the advocacy monitor

Independent Living News & Policy from the National Council on Independent Living

Abuse in Government Funded Residential Facilities

Approved by the NCIL membership June 2012

WHEREAS, the extent to which people with disabilities, residing in state, local and federally funded institutions are subjected to abuse is underreported, unknown and generally remains hidden from public scrutiny; and

WHEREAS, the population of individuals with disabilities includes children, adults and elders, residing in a variety of settings such as schools, nursing homes, hospitals, group homes, etc.; and

WHEREAS, the continued segregation of this population often results in a lack of disciplinary action, criminal charges, criminal prosecution and offender accountability against those perpetrating these acts; and  [Read more…]

Exploitation of People with Disabilities

Approved by the NCIL membership June 2012

WHEREAS, the extent to which people with disabilities are subjected to abuses of all kinds as a means to gain control of their benefits is unknown and often is long lasting; and

WHEREAS, recent accounts of individuals with disabilities in Philadelphia have highlighted the extent and cruelty that these predators will go to in order to gain and maintain this control; and

WHEREAS, this type of exploitation not only cost millions of tax payer dollars it also has a devastating effect on the health, well-being and independence of those individuals being exploited.  [Read more…]

Mad Pride Day

Approved by the NCIL membership July 2011

WHEREAS, Mad Pride celebrates the human rights and spectacular culture of people considered very different by our society;

WHEREAS, The name “Mad Pride” got its start in London when activists there saw a Gay Pride event and got madly inspired;

WHEREAS, Mad Pride may be celebrated anytime but is most often observed in the month of July, usually on or around July 14, Bastille Day;  [Read more…]

Support for Consumers with Mental / Emotional Disabilities

Approved by the NCIL membership July 2011

WHEREAS, The Temple University Collaborative on Community Inclusion for Individuals with Psychiatric Disabilities has published a “Fact Sheet” for Centers for Independent Living on “Serving People with Psychiatric Disabilities”;

WHEREAS, the “Fact Sheet” attempts to draw a connection between CILs and psychiatric providers by urging CILs to direct consumers with mental/emotional disabilities to medical and other professional service systems over consumer-run services and other forms of peer support;  [Read more…]

Opposition to Involuntary Electroshock

Approved by the NCIL membership July, 2011

WHEREAS, involuntary treatment of any kind is inherently damaging emotionally and physically;

WHEREAS, Electroshock (also called electroconvulsive therapy or ECT) has been documented to cause potentially permanent memory loss and cognitive deficits/learning disabilities and has a high risk of also causing epilepsy or other seizure disorders, cardiovascular complications and even death;  [Read more…]

Support of Healthy and Nontoxic Housing

Approved by the NCIL membership June, 2009

WHEREAS, NCIL believes it is the commitment of the Independent Living Movement to support and advocate for accessible and affordable housing for all people with disabilities throughout the United States.

WHEREAS, all people with disabilities need housing that will preserve health and vitality and preclude exposures that may further compromise wellbeing.  [Read more…]

Non-Discrimination, Advocacy and Outreach for GLBT People with Disabilities

Approved by the NCIL membership July, 2008

WHEREAS, NCIL believes it is the commitment of the Independent Living movement to advocate for the human and civil rights of all people with disabilities throughout the United States.

WHEREAS, to secure the full inclusion of gay, lesbian, bisexual, and transgender (GLBT) people with disabilities into society, it is necessary to defend their right to an integrated lifestyle.  [Read more…]

Protecting the Rights of Parents with Disabilities

Approved by the NCIL membership July, 2007

WHEREAS, in order to ensure the full inclusion of people with disabilities into society, it is necessary to protect the fundamental right of people with disabilities to reproduce and to raise their children; and

WHEREAS, NCIL believes it is not a person’s disability that inhibits a person’s capacity to provide a stable and loving home for children, rather it is a lack of disability related supports for a parent with a disability that can result in an unstable home environment; and  [Read more…]

Opposition to Involuntary Medical “Futility” Judgments

Approved by the NCIL membership July, 2007

WHEREAS, cases have arisen recently in which a health care provider has sought to withhold life sustaining medical treatment despite the expressed objection of the individual or their authorized representative; and

WHEREAS, most states have health care decisions laws which include “futility” provisions permitting physicians to refuse to follow an advance directive or individual decision in favor of treatment; and  [Read more…]

Medically Unnecessary Growth Attenuation and the Right to Bodily Integrity

Approved by the NCIL membership July, 2007

WHEREAS, the Washington state case of Ashley X, the parents of a severely disabled child decided to limit her growth through the use of estrogen therapy, in conjunction with a hysterectomy and breast bud removal, in order to keep her small and sexually immature; and

WHEREAS, the child in question is unable to communicate her preferences on her own behalf due to her disability; and  [Read more…]