the advocacy monitor

Independent Living News & Policy from the National Council on Independent Living

Deadline Extended: Apply for IL-NET’s National Learning Collaborative on Youth Transition at CILs by January 15, 2020!

Deadline Extended! Applications will now be accepted through Wednesday, January 15, 2020 at 11:59 p.m. EST. Apply today!

Are you excited to develop a youth transition program at your Center for Independent Living (CIL), but need a little help to get there?

IL-NET is offering an exciting new approach to support CILs that are ready to make a commitment to young people with disabilities.

Apply online

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Organizers Forum: Disability Organizing in 2020

Hear some powerful disability leaders share their visions for 2020. How is community organizing in disability communities going? How strong are we? What can we do differently? How are we addressing racism and intersectionality? What challenges and opportunities do we face this coming year? Please join to share your own and engage in dialogue!

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2020 Annual Conference: Workshop Proposal Deadline Extended; Plain Language Resources Now Available

July 20-23, 2020; Grand Hyatt, Washington

Deadline Extended

NCIL is extending the deadline for our 2020 Call for Workshop Proposals. We will now accept applications until Thursday, January 23, 2020 at 11:59 p.m. EST. Please visit our 2020 conference web page for more information.

Plain Language

We are also pleased to release the plain language version of our 2020 Call for Workshop Proposals.

The plain language application form is also available in Word or plain text.

 

Conference Logo: Evolution of our Revolution - 2020 Annual Conference on Independent Living. Graphic features a speech bubble and heart icon.

IL-NET Presents… A National Webinar: Fueling Business Acumen – How CILs are Securing Contracts with Health Plans and Payers

Many CILs are seeking to expand their services by contracting and partnering with health plans, managed care organizations, and other payers. But how do you build these relationships, and why are these contracts important to meeting the needs of the disability community? Join us for a panel discussion with CILs who are leading the way in working with health plans and payers to learn more about how they got to “the table”, what services are of interest to health plans and payers, and about the growth and financial support their CILs have experienced through contracting with health plans and payers.

Registration Fee: This event is free-of-charge.

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A Message from the National I&R Support Center: AIRS Annual I&R Conference Call for Proposals

Dear Aging and Disability I&R Professionals, 

The Alliance of Information and Referral Systems (AIRS) has released the call for proposals for the 2020 Annual Information and Referral (I&R) Training and Education Conference. The annual I&R conference is being held in Grand Rapids, Michigan, June 7-10, 2020. AIRS is seeking workshops addressing the breadth of I&R service delivery.  

The Aging and Disability conference track offers a unique opportunity to share developments and effective practices in serving older adults, persons with disabilities, and caregivers with I&R colleagues across the country. This track is coordinated by ADvancing States’ I&R Support Center, which strongly encourages aging and disability I&R agencies of all types to review the call for proposals and consider a submission.

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Information Alert: Spending Package Passed Congress

Congress has passed a spending package to fund the federal government for the remainder of Fiscal Year 2020 (FY20). Today, December 20, was the day the current Continuing Resolution (CR) was set to expire.

The spending package level funds the Independent Living program at $116,183,000. While level funding is far from what we need, we are very happy that Congress rejected the President’s proposal to cut the Independent Living program by nearly $8 million.

The package also include a 5-month reauthorization (and funding) for Money Follows the Person (MFP), and Spousal Impoverishment protections. While we have been hoping for permanent reauthorization, we will continue pushing toward that in 2020!

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NCIL Statement on the Fifth Circuit Court’s Ruling in Texas v. United States

The National Council on Independent Living (NCIL) is deeply concerned by Monday’s ruling from the Fifth Circuit Court of Appeals in Texas vs. United States. The court ruled that the individual mandate of the Affordable Care Act (ACA) is unconstitutional and sent the case back to the lower court to decide whether the remainder of the ACA can remain intact without it. Read the ruling (PDF). However, the district judge at the lower court has already ruled the entire law is unconstitutional, and this same judge now has the power to determine the fate of the ACA. 

The Court‘s decision puts the health care of millions of people in jeopardy. There is no question that repealing the ACA would have devastating consequences, and it would disproportionately hurt disabled people. Because of the ACA, insurers cannot discriminate against people with pre-existing conditions by denying coverage, charging higher premiums, or refusing to cover care related to those conditions. Insurers can’t impose lifetime or annual dollar limits. Plans must cover the Essential Health Benefits. Over 20 million people have gained health insurance and over 12 million people have gained Medicaid coverage through Medicaid expansion because of the ACA. All of this is at risk.

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Action Alert: Add Your Organization As A Signatory to the Key Principles for Mental Health Platforms!

Deadline: Wednesday, December 18; 12:00 Noon Eastern.

In response to some of the terrible proposals we have seen from presidential candidates around mental health that call for increased institutionalization and forced treatment, NCIL has joined a group of national mental health and disability rights organizations to develop a set of principles on mental health to share with campaigns. We are doing this to make our priorities on these issues clear, and we hope other candidates will take our community into account before developing their proposals. After consulting with attorneys knowledgeable in this area, we have determined that this is an allowable form of advocacy for a 501(c)(3).

These principles are open for signature from national, state, and local organizations. If you would like to sign on, please email Jennifer Mathis from the Bazelon Center at jenniferm@bazelon.org with your organization’s name (as you would like it to appear) and your state. The deadline to sign on is Wednesday, December 18 at 12:00 Noon Eastern. Please feel free to share this with other groups who may be interested as well.

Call for Workshop Proposals: 2020 Annual Conference on Independent Living

Conference Logo: Evolution of our Revolution - 2020 Annual Conference on Independent Living. Graphic features a speech bubble and heart icon.

July 20-23, 2020; Grand Hyatt, Washington

Submit a workshop proposal

NCIL’s Annual Conference is the largest Independent Living event of the year. NCIL regularly hosts over 1,000 people, including grassroots advocates, CIL and SILC leadership, members of Congress, government officials, and representatives from other organizations that work for justice and equity for people with disabilities.

The theme of NCIL’s 2020 Annual Conference on Independent Living will be Evolution of Our Revolution. 2020 will mark the 30th anniversary of the ADA and serve as a time to reflect and celebrate. We must also look forward and commit ourselves to the promise that the IL Movement belongs to everybody with a disability.

The Independent Living Movement is built on advocacy, love, and empowerment. We must fulfill this promise through discussions and real work to include and elevate individuals with disabilities who have not been welcomed or included.

Together we can build a more just, equitable, inclusive, and powerful Independent Living Movement. Therefore, NCIL seeks workshops that will advance the Independent Living Movement through intersectional discussions of equity, inclusion, and leadership development.

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Share Your Thoughts: Help Us Make Our Conference More Accessible

Every year, people come to Washington, DC to attend NCIL’s Annual Conference. We talk about how to make sure people with disabilities can live in our communities and have control over our lives. It is a chance to learn, plan, advocate, and have fun together. But we know the conference is not accessible to everyone in our community. And we want to change that.

Are you interested in presenting at – or attending – the NCIL Conference? Have you found it is not accessible to you? If so, we want to hear from you.

We want to hear from everyone; but we especially want to hear from people from groups who have been underrepresented at the Conference. This includes people whose disabilities are underrepresented, and multi-marginalized disabled people.

We need your input and guidance; but we are ready to do the work. And we are committed to working – on our own, and with you – to address these barriers. We want to make our conference as accessible as possible.

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