Deadline: Wednesday, December 18; 12:00 Noon Eastern.

In response to some of the terrible proposals we have seen from presidential candidates around mental health that call for increased institutionalization and forced treatment, NCIL has joined a group of national mental health and disability rights organizations to develop a set of principles on mental health to share with campaigns. We are doing this to make our priorities on these issues clear, and we hope other candidates will take our community into account before developing their proposals. After consulting with attorneys knowledgeable in this area, we have determined that this is an allowable form of advocacy for a 501(c)(3).

• Read the Key Principles for Mental Health Platforms

These principles are open for signature from national, state, and local organizations. If you would like to sign on, please email Jennifer Mathis from the Bazelon Center at jenniferm@bazelon.org with your organization’s name (as you would like it to appear) and your state. The deadline to sign on is Wednesday, December 18 at 12:00 Noon Eastern. Please feel free to share this with other groups who may be interested as well.

By Eryn Star, NCIL Summer Policy Intern

“We’re done fighting for marriage equality; we have it now, so we have to focus on other issues instead!” is something I’ve been hearing a lot in queer spaces for the past couple of years. I understand where many people are coming from; marriage is an institution that has been used as a tool of oppression against marginalized people, and the focus on marriage equality did lead to many LGBTQ+ rights issues getting pushed aside. However, that should not be used to deny that marriage equality remains an issue in the United States for disabled people. It is necessary for us to address this because it is both a healthcare and civil rights issue.

A major reason why many disabled people are unable to marry is because of SSI and Medicaid. SSI and Medicaid are needs-based and focus on current assets and income. If you are on SSI and/or Medicaid and you marry a partner not on those programs, your partner’s income and assets are taken into consideration, and so both of your incomes and assets will be used to determine your eligibility. Because the assets and income combined often becomes too high to qualify for these programs, many disabled people have lost their SSI and Medicaid benefits. As a result, some disabled people have been forced to divorce and live separately in order to keep SSI and/or Medicaid. If both partners are on SSI and/or Medicaid, they have an even higher risk of losing their benefits. Not only would their income and assets be combined, but they are also hit by a marriage penalty. Married couples are allowed to have less in assets than the partners would be allowed to have as individuals. They receive a maximum total benefit that’s significantly less than what they would receive on individual benefits, and is in fact only slightly more than one person’s individual benefits.

The National Council on Independent Living (NCIL) is thrilled that five district courts have issued preliminary injunctions to stop the Administration’s public charge rule from going into effect. Last Friday, October 11, 2019, injunctions were issued in New York, Washington, and California, and on Sunday, Illinois and Maryland followed with two more. NCIL, along with seventeen other national disability rights groups, filed an amicus brief (PDF) in several of these cases.

The final public charge rule would have gone into effect yesterday, October 15. The public charge rule would create significant additional barriers for immigrants – and especially disabled and poor immigrants – to enter the US or become lawful permanent residents. Under the new rule, receiving certain public benefits – like Medicaid, housing assistance, SNAP, or healthcare subsidies – or having a medical condition or disability can be used to deny entry or permanent residency. Disabled and low-income immigrants are clearly targeted by this rule, and the decisions from last week and yesterday are a huge victory.

The fight against the public charge rule is not over though, and NCIL will continue our work to oppose it. We will keep you updated as things move forward and as any need for advocacy arises. In the meantime, thank you for your work on this issue already.

Read more about the public charge rule.

NCIL has been working with a group of national disability rights and mental health organizations to push back against the rhetoric that people with psychiatric diagnoses are the cause of gun violence, and to fight against gun violence prevention proposals that discriminate against disabled people. With this rhetoric coming from many directions, and with the threat of new proposals and legislation remaining constant, it is more important than ever that we work together and speak out.

Decades of research has shown us what we already know: people with psychiatric diagnoses are no more likely to be violent than people without. And, people with psychiatric diagnoses are far more likely to be victims than perpetrators of violence. It is unacceptable to deprive a group of people their rights based solely on diagnosis and unfounded fear, which is what many – including the President – are proposing to do.

NCIL joined a coalition of 45 civil rights and social justice organizations, led by the Lawyers’ Committee for Civil Rights Under Law, in filing an amicus brief before the Supreme Court urging that the Department of Homeland Security’s rescission of the DACA (Deferred Action for Childhood Arrivals) program is unlawful. The brief was submitted Friday morning.

In late 2017, the Trump Administration abruptly terminated the DACA program. Legal challenges have kept the program in place, and it has now made its way to the Supreme Court, where a hearing is expected on November 12, 2019. 

You can read more information about the amicus brief in the Leadership Conference on Civil and Human Rights’ press release.

The National Council on Disability (NCD) and the National Disability Rights Network (NDRN) invite you to join an upcoming Virtual Roundtable Series on Involuntary Institutionalizations Before, During & After Disasters / Emergencies.

This virtual roundtable series seeks input from representatives from Centers for Independent Living (CILs) and Protection & Advocacy (P&A) agencies on collaborative approaches that address involuntary institutionalizations throughout disasters. Inspired by the recently released NCD report, Preserving Our Freedom: Ending Institutionalization of People with Disabilities During and After Disasters, conversations will be focused on collective next steps for P&As and CILs.

The American Civil Liberties Union, Center for Public Representation, the National Council on Independent Living (NCIL), and fifteen other national disability advocacy groups represented by the global law firm Latham & Watkins filed an amicus brief (PDF) in support of litigation to stop the U.S. Department of Homeland Security (DHS) from implementing its new “public charge” rule. Twenty-one states, led by California, Washington, and New York, have filed cases against the Trump Administration to block the new rule. The advocacy groups – representing tens of thousands of people with disabilities and their families across the country – claim that the new public charge rule will prevent people with disabilities from entering this country or becoming legal residents in violation of federal disability law.