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Independent Living News & Policy from the National Council on Independent Living

Civil Rights & the ADA

Op-Ed: A Unified Cross-Disability Movement Fuels Needed Change

By Ronald Bassman PhD, NCIL Mental Health Subcommittee and Mindfreedom International

By way of introduction, I am a person who spent his 23rd birthday locked in a seclusion room of a mental hospital diagnosed with paranoid schizophrenia. Not responding to massive doses of Thorazine and Stelazine and considered hopeless, I became one of the last of the patients (prior to its being banned) to be subjected to insulin coma therapy along with electroshock. Five times a week for 8 weeks, I was strapped down and injected with enough insulin to put me into 40 comas. The “treatments” resulted in memory loss, blunted emotions, and an inability to concentrate enough to read. I was discharged and advised that I would have to take psychiatric drugs for the rest of my life and to abandon any hope of using my Master’s degree in psychology.

My story is long with twists and turns, so I will simply mention a few highlights. Despite all the dire predictions and the assault on my body and spirit, I did recover, return to university and became a licensed doctoral level psychologist. I have had no therapy nor taken any psychiatric drugs for more than 40 years. The more complete story can be found in the book I wrote, A Fight to Be: A Psychologist’s Experience from Both Sides of the Locked Door. Since my healing/transformation, I have devoted my life and work to changing a health care system that crushes the spirit and too easily and too often randomly violates the rights of those who are labelled “others.”

[Read more…]

Information Alert: Opportunity to Partner with VoteRiders

As the 2022 Midterm elections approach, it is important for voters to know what they need to be able to cast their ballot. Each state has different laws and requirements for what type of voter identification voters need to bring with them to the polls. 

VoteRiders is a nonpartisan, nonprofit organization that works to ensure that all citizens are able to exercise their freedom to vote. They inform and help citizens to get the voter ID that they need to bring to the polls. They also provide free services to direct service providers, such as Centers for Independent Living, to help their consumers get voter ID.

Recently, VoteRiders created a 2022 Partner Toolkit for organizations who are conducting nonpartisan voter registration and education efforts. It details the ways that VoteRiders can help in these nonpartisan voter engagement efforts.

Some of the services that VoteRiders provides:

  • Voter ID Assistance: VoteRiders provides voters with logistical, legal, and financial support to secure voter ID.
  • Voter ID Clinics and Virtual Voter ID Support: VoteRiders can host a Voter ID clinic or share their services and contact information with your consumers. They are able to provide voters with one-on-one assistance to obtain documents and ID.
  • Voter ID Helpline and Chatbot: Voters can call or text 844-338-8743 at any time to reach the VoteRiders Voter ID Helpline. The Voter ID Chatbot is available via SMS or Facebook Messenger. These resources can provide free help to voters on obtaining voter ID.
  • Voter ID Info Cards: VoteRiders has pocket-sized guides to allow voters to quickly reference their state’s voter ID rules. These cards are available in English and Spanish for all 50 states and Washington, DC. They are free to download, and VoteRiders prints and ships physical cards to registered 501(c)(3) nonprofits at no cost.

To learn about other services VoteRiders provides, and to join the VoteRiders Coalition, visit http://voteriders.org/partner or email info@voteriders.org.

A Message from NCIL’s Diversity Committee

We as the NCIL Diversity Committee would like to assure to our membership that we understand and are committed to continuing our efforts to bringing intersectionality and diversity together. This will allow people who are not often seen or heard, because of underrepresentation, to have the opportunity to be at the table. This includes reaching out and connecting to the youth to hear what they have to say because their voices matter, and they are the future of this movement. The NCIL Diversity Committee is dedicated to the work that will not just benefit our organization but will benefit the disability community as a whole and future generations to come. 

[Read more…]

Free Webinar: Campaigning with a Disability

  • Monday, March 21 
  • 1:00-2:00 p.m. Eastern

We need more people with disabilities representing our communities in elected positions. But the process of running for an elected position can be inaccessible, intimidating, and unclear. Join this webinar to learn about the process of campaigning from people with disabilities who have done it!

This webinar is co-hosted by the REV UP Voting Campaign at the American Association of People with Disabilities and the National Council on Independent Living (NCIL). The webinar will include a presentation from Sarah Blahovec, Voting and Civic Engagement Director at NCIL.

This webinar will include ASL and live captioning. For additional accommodations or to request Spanish captions or audio, contact Lilian Aluri at laluri@aapd.com as soon as possible.

FEMA Civil Rights Summit – 2.0 Equity

FEMA’s Office of Equal Rights invites you to save the date for our upcoming Civil Rights Summit – 2.0 Equity. This event is designed to foster dialogue and partnerships through direct engagement with FEMA. Presentations and discussion will cover FEMA programs and services, with special emphasis on improving equity in emergency management. NCIL Executive Director Reyma McCoy McDeid will be a panelist.

FEMA’s Civil Rights Summit

Please register in advance for these events so we may keep you informed as additional information becomes available.

This event will be presented in English and translated into Spanish, with captioning and Sign Language Interpretation provided for each. If you require alternative formats or other accommodations because of a disability, please contact FEMA’s External Civil Rights Resource Line at 833-285-7448 (833-CVL-RGHT) or email us your request at FEMA-CivilRightsOffice@fema.dhs.gov.

We welcome you to share this announcement broadly with your networks. Thank you for your partnership!

Separa la Fecha: Cumbre de Derechos Civiles de FEMA– 2.0 Equidad

La Oficina de Igualdad de Derechos de FEMA los invita a que separen la fecha para la próxima Cumbre de Derechos Civiles ­ ­̶ 2.0 Equidad. Este evento está diseñado para promover el diálogo y la colaboración mediante una interacción directa con FEMA. Las presentaciones y las discusiones incluirán los programas y servicios de FEMA, con un énfasis especial en mejorar la equidad en el manejo de emergencias. La directora ejecutiva de NCIL, Reyma McCoy McDeid, será una panelista.

[Read more…]

NCIL Statement on its Ongoing Commitment to Racial Equity

In the days following the state murder of George Floyd, organizations across the world issued statements. Statements were their way to show they cared about the issue of police violence. They were statements of solidarity. Statements of sympathy. Statements of support. By May of 2020, the National Council on Independent Living (NCIL) had been working on racial equity issues for a year. The board started their work with an equity and inclusion consultant in October 2019. In June 2020, the NCIL Board issued our own statement. The NCIL statement was a commitment to continuing the work of examining our own operations at all levels to incorporate anti-racism into our advocacy. NCIL also committed to lead in including racial equity into disability advocacy.

Just a year after this commitment, the NCIL board hired Reyma McCoy McDeid. Reyma is the first disabled Black woman to lead a national disability-run organization. The decision to hire her should not have been surprising. Reyma brings impressive credentials to the position. Reyma has a history of effective work in disability service and advocacy spaces. What the board did not appreciate, even with the racial equity work that had been undertaken, was how the organization would be required to confront implicit bias as our members, our partners, and the larger community interacted with NCIL under the leadership of a Black woman.

NCIL is no stranger to the struggle in addressing structural bias. Indeed, challenging ableism has demanded a dogged commitment, holding friends, allies, providers, and opponents accountable for removing barriers and addressing outdated thinking about disabilities and people with disabilities. It has meant challenging others’ unconscious bias. Unconscious bias is when he hold beliefs that we do not realize make up part of our thinking. It is important to challenge unconscious bias because that thinking limits our potential as much as physical barriers in the environment does.

NCIL has made the commitment to challenge our own bias, unconscious and otherwise, when it comes to issues related to race. NCIL has committed to bringing the energy and intensity we have used to move disability rights forward to create accountability inside and outside our movement for the ways that Black and brown people of color are perceived, treated, and excluded. We will no more allow people to accuse the organization or the leadership of the organization of “playing the race card” than we have allowed others to accuse us of using our disabilities to get “special treatment.”

NCIL is pleased to be joined in the commitment to disability justice by allies in the movement. The willingness of partner organizations to take up this work has been encouraging.

Centene shares in NCIL’s commitment to disability justice. Centene recognizes that our nationwide network of members is critically impacted as structural bias based on disability, race, gender identity or sexual orientation ties directly to health and well-being. We appreciate the leadership NCIL is showing by embracing equity in all its forms.

– Rick Fredrickson, Centene Corporation, St. Louis, Missouri

CILs around the country have embraced NCIL’s leadership in advancing the conversation and supporting the work of promoting equity in all areas.

NCIL’s courage in calling out racial bias in disability spaces has placed it apart from other organizations. With Reyma McCoy McDeid’s leadership, the disability rights movement is progressing with a vision of inclusion and equity for all members of our community, and an unrelenting demand to deliver the potential of a generation of work to the most marginalized members of our community.

– Shari Coatney, SKIL Resource Center, Parsons, Kansas

The investment in the long-term sustainability from disability leaders with a history in the organization has been greatly appreciated.

As seasoned NCIL leader, I was pleased to have the opportunity to talk with Reyma early in her tenure as Executive Director of NCIL. Her straightforward approach and vision for NCIL’s movement towards a justice-oriented framework represents a culture change for the organization. A needed change for the evolution and continuation of our fight for disability rights for generations to come.

– Ann McDaniel, West Virginia Statewide Independent Living Council

NCIL staff have joined in on the work needed to create cultural change for the organization.

As NCIL approaches our 40th anniversary, we are poised for a shift towards intersectional disability justice – an approach that opposes broad systems of oppression and marginalization in our pursuit of justice for disabled people. NCIL staff eagerly support this shift and feel that it is imperative for the continued success and longevity of the organization. We encourage other disability organizations to join us in this work.

– Tim Fuchs, Director of Operations, National Council on Independent Living

Diversity is not enough. A commitment to diversity alone does not support people in positions where the outside environment continues to discriminate, including members within the organization or past leaders of the organization. The NCIL Board is committed to promoting equity and inclusion, through leadership in the organization and by demanding accountability and change where bias in all its forms happens.

We are thankful for the leaders in the disability rights movement who have joined us in welcoming Reyma to her position and supporting the organization’s shift towards disability justice work. We look forward to shared growth in this commitment with existing partners, and to developing new partnerships with people, groups, and allies who share a vision of a society without barriers for anyone.

Take Action: CVS is Trying to Gut Disability Rights – Tell Them to Back Down!

CVS claims a strong commitment to the disability community. Earlier this year they put out a statement honoring the 31st anniversary of the Americans with Disabilities Act (ADA) and boasting their commitment to ensuring health care is accessible. Yet this December, the US Supreme Court will hear arguments in CVS v. Doe, in which CVS is fighting to gut the protections of disabled people across the country. We need to take action and tell CVS to pull this case from the Supreme Court today!

More about CVS v. Doe

CVS v. Doe is a case brought by HIV-positive people (the “plaintiffs”) against CVS. CVS requires the plaintiffs, who have pharmacy insurance coverage through CVS, to use a specialty medication program. The plaintiffs want CVS to allow them to opt out of the program because they are having problems getting their medications and the information they need from qualified pharmacists.

CVS is arguing their program is lawful and that Section 504 of the Rehabilitation Act – a law that prohibits discrimination on the basis of disability – does not cover situations where discrimination is unintentional. But the disability community knows all too well that not all discrimination is intentional. Many policies that seem neutral can harm or exclude people with disabilities – this type of discrimination is often referred to as “disparate impact”. CVS is arguing that Section 504 does not cover disparate impact discrimination.

[Read more…]

Happy Vote Early Day!

Today is Vote Early Day, a nonpartisan holiday created to help Americans know when, where, and how to vote early. In 2021, there are many elections happening across the country, in New Jersey, Virginia, and in many local communities. Election Day is November 2, 2021. If there is an election in your state or community, you might be able to vote early.

Is there an election happening in your community? Contact your local election official to learn about elections in your community and whether you can vote early.

If there is an election in your community this year, make a plan to vote! Use the “Plan Your Vote 2020 Toolkit” from the National Coalition on Accessible Voting to make a plan to vote this year.

Spread the word on social media! Use the hashtag #VoteEarlyDay to share if you are voting early this year. You can also use the hashtag #VoteReady to talk about your plan to vote.

Webinar: Race, Disability, Organizational Culture, and Social Change: Promising Practices from Centers for Independent Living

October 28, 2021; 2:00 PM – 3:30 PM EDT

Register online

Part of the RACE + DISABILITY webinar series, co-sponsored by FISA Foundation, The Heinz Endowments, and The Pittsburgh Foundation

Historically, disability services were designed to accommodate a singular identity: person with a disability; all other aspects of an individual’s experience were considered secondary. But structuring services that ignore the lived experience of racism has created and exacerbated inequities within disability services. Treating disability as race-neutral has also created unwelcoming and sometimes unsafe working conditions for people of color with disabilities who are on staff.

This session will explore promising practices in cultivating a welcoming and equitable culture, designed to include people of color with disabilities who are both consumers of services and staff offering support. Presenters represent various Centers for Independent Living. All panelists are multiply marginalized people with disabilities who are recognized for their efforts to advocate for equity in both the provision of supports and the leadership of staff.

This session will:

  • Ground participants with professional and personal understanding of what intersectionality in disability services looks like;
  • Provide context regarding how attempts to provide services without an intersectional lens can cause unnecessary harm to consumers;
  • Present action steps that providers and managers can take to address existing equity gaps at their agencies.

PRESENTERS:

  • Reyma McCoy McDeid
  • Ami Hyten
[Read more…]

One Week Away! Elevate: Campaign Training for People with Disabilities

Join us on Thursdays from October 14th to November 4th to learn the skills you need to run for elected office. Elevate: Campaign Training for People with Disabilities is a nonpartisan series of webinars bringing together campaign experts and elected officials to teach you how to run your first campaign. All webinars will have CART captioning and American Sign Language Interpreters.

If you cannot attend the live webinars, we will be recording and sharing each session. You will also have the opportunity to submit questions ahead of time so that we can answer them during the training.

You must be a member of NCIL to participate in this webinar series. Individual NCIL memberships are just $35 / year, and $10 / year for people ages 26 and under. NCIL does not turn anyone away for financial reasons. For dues waivers or reductions, contact Tim Fuchs at tim@ncil.org.

Course Schedule:

Introduction to Campaigns, Self and Opposition Research

Thursday, October 14, 2021

1:00 to 2:30 PM Eastern

Your Story. Your Campaign. Your Brand Online.

Thursday, October 14, 2021

3:30 to 5:00 PM Eastern

POWER Fundraising: 5 Keys to Raising Money Confidently and Effectively (Even If You’re a First-Time Candidate and Never Fundraised Before!)

Thursday, October 21, 2021

1:00 to 2:30 PM Eastern

Organizing Post Obama, Trump, and COVID

Thursday, October 21, 2021

3:30 to 5:00 PM Eastern

Harnessing Your Power to Advocate for Change

Thursday, October 28, 2021

1:00 to 2:30 PM Eastern

Fundamentals of Digital Media

Thursday, October 28, 2021

3:30 to 5:00 PM Eastern

Campaign Outreach Methods: Paid, Earned and Owned Media, Direct Mail, and Email Marketing

Thursday, November 4, 2021

1:00 to 2:30 PM Eastern

Thank you to our generous sponsors for making Elevate possible!

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