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Independent Living News & Policy from the National Council on Independent Living

Fact Sheet: Protecting Seniors and People with Disabilities by Improving Safety and Quality of Care in the Nation’s Nursing Homes

Source: White House

All people deserve to be treated with dignity and respect and to have access to quality medical care. And in no case should a health care facility be causing a patient harm. The President believes we must improve the quality of our nursing homes so that seniors, people with disabilities, and others living in nursing homes get the reliable, high-quality care they deserve. That’s why he is announcing a set of reforms—developed by and implemented through the Department of Health and Human Services (HHS)—that will improve the safety and quality of nursing home care, hold nursing homes accountable for the care they provide, and make the quality of care and facility ownership more transparent so that potential residents and their loved ones can make informed decisions about care.

NCIL Announces New Operations Director and Says Farewell to Tim Fuchs

We are pleased to announce that Jenny Sichel, NCIL’s Program Coordinator, has accepted the position of Operations Director beginning March 1, 2022. Jenny has been on NCIL staff for a little over a year, most recently managing the Barrier Removal Fund project. She previously coordinated the Next. and LINK20 programs where she led over 500 disability advocates in developing and implementing social and policy change. She will complete her Master’s in Public Administration at Northeastern University in Boston in May, and also has a B.A. in Mathematics from Bryn Mawr College. Jenny is a Paralympic rowing coach and has previously won a Silver Medal at the 2016 Paralympic Games. Additionally, Jenny has been a keynote speaker on multiple occasions and excels at event coordination and planning. Please join us in congratulating and welcoming Jenny in this important role.

We also wanted to publicly say farewell to Tim Fuchs and thank him for his 18+ years of amazing service to NCIL and to the Independent Living community. Tim’s values, vision, and ethics have imprinted a deep and lasting legacy on NCIL’s character and we will miss him terribly (although he will always be connected to Independent Living and we know where to find him!). Thank you, Tim. And congratulations on your new adventures!

White House Fact Sheet: Administration Announces New Actions to Address the Needs of People with Disabilities & Older Adults in Response to & Recovery from COVID-19

Source: The White House, Washington

The Administration recognizes that the COVID-19 pandemic has had tremendous impacts on disabled individuals and has resulted in new members of the disability community.
 
Over the past year, the Administration has collaborated and consulted with the disability community and taken several key actions to address the unique needs of individuals with disabilities. Among other actions, the U.S. government released key civil rights guidance to protect disabled individuals during the COVID-19 pandemic or any public health emergency; prioritized Long COVID services, supports, and research in the context of disability; established a call line dedicated to ensuring individuals with disabilities can equitably utilize the Administration’s at-home test distribution program; ensured disabled individuals and other high-risk individuals have access to at-home testing; and invested American Rescue Plan (ARP) resources to build COVID-19 vaccine confidence and access among people with disabilities.
 
Moving forward, the Administration will take several key steps to further our work to ensure that disabled individuals, regardless of where they live or the level of community transmission of the virus, have equitable access to COVID-19 testing, masks, and other critical mitigation strategies. The Administration remains committed to implementing these policies and developing additional policies in close collaboration with the disability community – keeping equity and accessibility at the center of our COVID-19 response and beyond. The Administration will:

[Read more…]

2022 Annual Conference on Independent Living: Call for Volunteers

2022 Annual Conference on Independent Living Logo: Forging Justice

July 25-28 (Grand Hyatt, Washington, DC); August 1-3 (Virtual Workshops)

Dear Friends of NCIL,

The in-person portion of NCIL’s 2022 Annual Conference on Independent Living is scheduled for July 25-28, 2022 at the Grand Hyatt Washington. If you are interested in volunteering, we have opportunities for you!

Committed volunteers are critical to this conference’s success. We have wonderful incentives for those who put in volunteer hours.

  • If you volunteer 5-9.9 hours, half of your registration fee is waived / reimbursed.
  • If you volunteer 10 or more hours, your full registration fee will be waived / reimbursed.
[Read more…]

NCIL Job Announcement: Operations Director

The Operations Director’s function is to manage the day-to-day operations of the organization. They shall also direct all of NCIL’s major projects and grants, the national Annual Conference on Independent Living, membership activities, trainings, and special events. Read full job announcement.

Deadline to apply: February 15, 2022

NCIL Anniversary Logo: Celebrating 40 Years

FEMA Seeks New Members for National Advisory Council

Deadline to apply: March 31

The Federal Emergency Response Agency (FEMA) is seeking qualified individuals to lend their expertise and serve on the agency’s National Advisory Council. They are specifically seeking applicants with expertise on the needs of people with disabilities and older adults for emergency preparedness, response, and recovery.

The National Advisory Council includes a geographically diverse and substantive cross-section of 35 members who advise the FEMA Administrator on all aspects of emergency management, ensuring input from and coordination with state, local, tribal and territorial governments, as well as the private and nonprofit sectors.

Individuals appointed to the council bring their experience and diversity of views to provide the Administrator consensus recommendations on a broad range of issues. 

[Read more…]

Survey on Care Rationing

Throughout the COVID-19 pandemic, hospitals and states have proposed and enacted discriminatory plans to ration scarce health resources. As part of an anti-care-rationing coalition, NCIL is sharing this Care Rationing Survey. The survey was put together by the Fat Legal Advocacy, Rights, and Education Project (FLARE) and the #NoBodyIsDisposable Coalition to gather the stories of people who are having/have had trouble getting medical care during COVID. Stories will be shared to create awareness and support advocacy for fair medical treatment. Respondents can choose whether or not to share anonymously.

If you need a plain text version, contact [email protected].

Darrell Jones Selected as NCIL Interim Executive Director

The National Council on Independent Living (NCIL) Board of Directors is pleased to announce that it has named Darrell Jones (she / her) as its Interim Executive Director. Jones has more than 40 years’ experience in the disability and Independent Living movement, including being involved in the founding of the National Council on Independent Living.

Most recently, she served as senior advisor to the national training and technical assistance programs for CILs and SILCs at the Independent Living Research Utilization (ILRU) IL-NET project, where she previously served as Project Director for five years and Program Coordinator for six years. Prior to these positions with the IL-NET at ILRU, she served as Training Specialist for the National Council on Independent Living’s IL-NET sub-contract with ILRU. Jones was founding Executive Director of one of the first Title VII funded CILs in the nation in Rochester, New York, then served as founding Executive Director of the Association of Independent Living Centers in New York for seven years. Jones identifies as a person with a disability.

During the next several months, Jones will help to advise the organization through the transition by working with the Board of Directors and a Transition Team. The Transition Team will be assembled with members serving under the direction of NCIL President Kent Crenshaw, and will include members of the Board and external stakeholders that will continue the work of assessing the organization and planning for the future of NCIL.

At this time, we are also announcing that the search will begin immediately to fill the upcoming vacancy of Operations Director. The job posting will be shared on NCIL’s website in the coming days. We encourage any candidates that have interest in the position to apply. We hope to fill this position as soon as possible.

At this time, NCIL remains committed to our mission and activities of the organization continue to be fully operational. This includes legislative and advocacy work, projects and grant activities, and the preparation for the next Annual Conference.

NCIL Anniversary Logo: Celebrating 40 Years

NCIL Goes Fully Virtual!

Like many organizations, when NCIL went remote in March 2020, we had to adapt very quickly. While we missed the social and practical benefits of a physical office, it became apparent that our productivity wasn’t diminished by working remotely. We could still get the work done – and we did. We’ve hosted two virtual conferences, transitioned previously on-location trainings to webinars, and made countless gains in our policy work. In addition, we found that remote work was much more accessible for many of our staff.

Going virtual made financial and logistical sense. So, as of today, we are pleased to announce that our office is now fully remote. Our business phone numbers are still active, and you can reach us by the same phone numbers as always. Our new mailing address is as follows:

National Council on Independent Living
PO Box 31260
Washington, DC 20030

We look forward to continuing our work and the future we will create together.

Announcing NCIL’s Home Modifications Fact Sheet for CILs

Presented by NCIL and the KU RTC/PICL

NCIL is excited to announce the Home Mods Fact Sheet. This fact sheet is intended to support CILs looking to create or expand a home modification program. NCIL would like to thank the team at PICL (Promoting Interventions for Community Living) at the University of Kansas, as well as our featured CILs: PILR in Placer, CA; The Ability Center of Greater Toledo; and accessABILITY in Indianapolis for their support and guidance.

Home modifications or “home mods” are changes a person makes to make their home accessible to them. Home mods can be as simple as a small threshold ramp to get through a doorway or as major as a full renovation. Some of the most common home modifications are ramps, improvements to doorways and entrances, and bathroom modifications.

A lot of Centers for Independent Living (CILs) operate home modification programs to help people make their homes more accessible. In a 2021 NCIL / RTC/PICL survey on home mod programs, 70% of CILs reported operating a formal home mod program. Some CILs help recommend improvements, others help with minor home mods, and some CILs assist with everything from recommendations, planning, and construction.

This fact sheet will share resources for your CIL, along with promising practices and real world examples from several CILs with successful home modification programs: accessABILITY in Indianapolis, Indiana; The Ability Center of Greater Toledo in Ohio; and Placer Independent Living Resource Services (PIRS) in Auburn, California.