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Independent Living News & Policy from the National Council on Independent Living

Help Our Money Follows the Person Advocacy – Share Your Experiences this Week!

As you know, NCIL aims to bring your issues and concerns to legislators on the Hill. Because Centers for Independent Living (CILs) are the only entities that are Congressionally-mandated to do transition work, it is imperative that we are able to tell members of Congress about the difficulties CILs are experiencing in participating in the Money Follows the Person (MFP) Program.

As such, we need your stories.

Please tell us what state you are in and:

  1. If you have been locked out of participating in the MFP Program;
  2. If you have had difficulty participating in the MFP Program and why; and
  3. If the bureaucracy has made it difficult / impossible for you to participate in the MFP Program.

Please share your responses with Sheryl Grossman, NCIL Community Living Advocate, at [email protected], by Friday, September 13, 2019.


  1. Jennifer Ochs says

    I think it’s quite clear we need to revamp our whole healthcare system. No one is happy, providers and consumers.

    I had two bone marrow transplants with the first one being in 2012, just recently I saw a pulmonologist and he told me I should have been followed by a bone marrow transplant doctor. In 7 years not one doctor has mentioned this.

    Plus, after my first transplant Duke University told me I was cured but I relapsed in 2013.