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Independent Living News & Policy from the National Council on Independent Living

University of Illinois at Chicago Seeks Research Participants Who Have Lived in Nursing Homes

The University of Illinois at Chicago is conducting a study with people with disabilities to identify and address participation disparities among people with disabilities.

A black and white photo of a person carrying a sign that reads "Institutions Aren't Solutions"Currently, they are collaborating with six Americans with Disabilities Act (ADA) Centers across the nation to learn about participation disparities experienced by people with disabilities who moved out of nursing homes. They are looking for 50 people with disabilities to help with the study. Participants will be asked to be part of one 90-minute interview to talk about their experience with living in the community after transitioning out of institutions.

In order to participate, you must meet the following criteria:

  • have a disability as defined by the ADA
  • have lived in an institution (e.g., public nursing home, institution for mental disease, intermediate care facility, or large group home)
  • age 18-64 currently or at the time of moving out of an institution
  • currently close to moving out of an institution OR have transitioned out of an institution within the past 5 years

All participants will receive a $25 gift card for completing the interview. 

If you are interested in participating in the study, please contact:


  • Toll Free: 800-949-4232 V/TTY (DC, DE, MD, PA, VA, WV)
  • Local: 301-217-0124 V/TTY

Please mention that you are interested in the “ADA PARC Study”.

Principal Investigator: Joy Hammel, PhD, OTR/L


  1. Last year I moved from Western State Hospital after living there for three years, Prior to Western State Hospital I lived in several skilled nursing facilities from the time I was a teenager. I have many health concerns and am intellectually disabled along with my mental health concerns and my health issues. I now live in Supported Living in a house I share with two other gentlemen. I am learning to take care of myself, do tasks within my household and am exploring my community. I would like to have a job, but my health concerns limit my work availability.

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