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Independent Living News & Policy from the National Council on Independent Living

NCIL Statement on the Treatment of Haitians at the US Southern Border

In July of 2019, in response to the racist and xenophobic remarks publicly articulated by our then-president, the National Council on Independent Living (NCIL) released a statement of solidarity. The statement was in support of people attempting to enter the US via the country’s southern border. In that statement, we acknowledged that the racism which fueled the comments extended beyond that individual and into our organization. We made several commitments in that statement to move beyond simply writing platitudes. We seized the opportunity to publicly announce our intention to face the systemic oppression that racially marginalized disabled people experience. Our commitment included people at the US’s southern border and beyond, including within our organization.

Since then, NCIL has embarked on a journey to becoming an intersectional organization. That process has led to the transformation of its body of Executive Officers. Our executive board is now a committee where racially marginalized members are the majority. The Board hired a subject matter expert on racial equity and Black woman as executive director. Our Diversity Chair is a Black woman. Both NCIL’s ED and Diversity Chair are members of the IDD community. Soon, we hope to announce the name of our new governing board president, a Black man. Thanks to our partnership with the Ford Foundation, we are further able to prioritize intersectionality in our programming. Our work to re-fashion NCIL as an anti-racist organization is far from over. We recognize that work is never ending. We are humbled by the road ahead of us. We are enthusiastically working toward an independent living network that is intersectional and, therefore, truly inclusive.

Two years after we expressed solidarity with immigrants at the US’s southern border the US finds itself, once again, in a position where its actions are causing harm to racially marginalized people fleeing their homes in the hopes of safety for themselves and their families. This is despite a change in the administration in the White House.  Two years ago, the migrants were largely Latinx. The human rights violations included keeping people in cages. The violations included separating children from their adult loved ones. Today, those detention facilities remain in operation. Today, asylum rights still are not being honored. Today, the abuses include Black migrants. Today, the human rights violations Black immigrants are experiencing include being whipped by US Border Patrol agents. 

As we noted in our statement two years ago, the treatment of immigrants at the US’s southern border was reprehensible. Although the population targeted by this treatment today has changed, our assertion remains the same. Unlike the previous administration, the current administration at the White House has  pledged to ensure that immigrants to the US would be treated humanely, no matter their country of origin. The current Administration has highlighted racial equity as one of its original priorities. Today, NCIL calls on the White House administration to join us in following through with its own promises to racially marginalized people. The White House should heed the recommendations of the United Nations (UN) and stop expelling Haitian immigrants without first assessing whether they qualify for refugee status.

Congresswoman Ayanna Pressley, Pennsylvania Representative Jessica Benham to Speak at Elevate 2021

The National Council on Independent Living is excited to announce our speakers and trainers for Elevate 2021! Elevate: Campaign Training for People with Disabilities will happen October 14th through November 4th, 2021. We will be joined by guest speakers including Massachusetts Congresswoman Ayanna Pressley and Pennsylvania State Representative Jessica Benham. We will also hear from many people with disabilities about their own experiences with running for office, working on a campaign, and organizing. We will hear from Vilissa Thompson of Ramp Your Voice, Dom Kelly of Fair Fight Action, Tory Cross of Be a Hero, Atima Omara of Omara Strategy Group, and many more!

Join us for seven 90-minute, nonpartisan webinars on campaign topics led by experienced campaign trainers and guest speakers. Each webinar will have CART captioning and American Sign Language interpreters.

Register for Elevate 2021

Elevate 2021 Course Schedule

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The Emergency Broadband Benefit: Additional Information and Expanded Eligibility

The Emergency Broadband Benefit is a program that helps low-income households afford internet services and devices during the COVID-19 pandemic.

Households that are eligible can receive:

  • One discount up to $50/month on broadband service and related equipment (up to a $75/month discount for households on qualifying Tribal lands)
  • A one-time discount up to $100 for a laptop, tablet, or desktop computer

The program is run by the Federal Communications Commission (FCC). The FCC has a website with information about the program. This website also has information about eligibility, how to apply, and how to find a local provider.

This is an important program, so please help us spread the word! If you work at a Center for Independent Living (CIL) or another organization that serves disabled people, please share this alert.

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NCIL and the Ford Foundation: Partnering to Create an Intersectional Future for the Disability Community

The National Council on Independent Living (NCIL) is pleased to announce our newest partnership with the Ford Foundation that will both support the development of the next generation of disability advocates and enhance our efforts to fully establish Independent Living (IL) as a part of the disability justice movement.

In recent history, there have been substantial changes to the status of disabled people in the United States as a result of the passage of disability rights legislation like the Americans with Disabilities Act (ADA). Yet, as NCIL embarks on our fortieth anniversary, we recognize that, for us, the vital work of disability justice is just beginning. Our movement is at a pivotal point in time, where we have both the wisdom of key historic figures in IL and disability rights to remind us of how far we’ve come and the insight of emerging leaders to show us where we need to go next. The generous grant funding from the Ford Foundation will assist us in getting there in several key ways, including the relaunching of our programming geared towards young disabled people into a multigenerational and intersectional initiative that connects the next generation of decision makers with disabilities with those who have paved the way. 

“The work toward equity requires a diverse disability movement and leadership that centers disability in all forms of injustice,” Rebecca Cokley, Program Officer at the Ford Foundation, remarks. “The Ford Foundation is proud to support NCIL to help build the next generation of grassroots disabled leaders.” 

“I came to here to do exactly what the Ford Foundation is now supporting us to do. I couldn’t be more humbled at the opportunity to serve as leader for this organization during such a turning point for IL and I look forward to seeing what happens next for us,” notes Reyma McCoy McDeid, NCIL’s Executive Director.

The National Council on Independent Living is the longest-running national cross-disability, grassroots organization run by and for people with disabilities. Founded in 1982, NCIL represents thousands of organizations and individuals including: individuals with disabilities, Centers for Independent Living (CILs), Statewide Independent Living Councils (SILCs), and other organizations that advocate for the human and civil rights of people with disabilities throughout the United States.

Since its inception, NCIL has carried out its mission by assisting member CILs and SILCs in building their capacity to promote social change, eliminate disability-based discrimination, and create opportunities for people with disabilities to participate in the legislative process to effect change.

Media Contact:

Jenny Sichel
Program Coordinator
[email protected]
www.ncil.org

Planet Fitness, Home of the Judgement Free Zone, and the Coalition for Inclusive Fitness Announce Accessible Exercise Equipment Commitment Benefitting People with Disabilities

Hampton, N.H. (September 21, 2021) — Planet Fitness, Inc. (NYSE: PLNT), one of the largest and fastest-growing global franchisors and operators of fitness centers with more members than any other fitness brand, and the Paralyzed Veterans of America, National Council on Independent Living, and American Council of the Blind (collectively “Coalition for Inclusive Fitness” or the “Coalition”) today announced a commitment to expand access to accessible exercise equipment.

“As a leader in the industry and home of the Judgement Free Zone®, it is our mission to provide an inclusive and welcoming environment to anyone who comes through our doors,” said Chris Rondeau, Planet Fitness’ Chief Executive Officer. “People with disabilities face significant barriers when attempting to access health and wellness activities, and it’s clear that health inequity is often due to a lack of access and opportunity. Today’s commitment is another way we are working to eliminate barriers and enhance people’s lives by providing a high-quality fitness experience for everyone.”

The Coalition is focused on working with global organizations to build inclusive health communities that provide people with disabilities equal access to, and opportunities for, healthy living. Planet Fitness is committed to providing inclusive equipment in all new stores and adding it to existing stores across the country as franchise owners replace current offerings, as inclusive commercial grade equipment becomes available for purchase and is approved by Planet Fitness for inclusion in its clubs.

Planet Fitness will enhance the amount and variety of accessible equipment provided at its clubs by adding new inclusive equipment that conforms with ASTM standards as it becomes commercially available for purchase after clearing through a due diligence process, in accordance with set phased-in time parameters.

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Register Now for a Webinar on the Emergency Rental Assistance Program

Source: Administration for Community Living (ACL)

Are you serving people at risk of eviction or who have been evicted? Are you working with landlords whose tenants are behind on rent as a result of the COVID-19 pandemic? Do you serve people facing housing instability or economic hardships?

If you answered, “yes,” to any of those questions, then this webinar is for you! Join the Administration for Community Living, in partnership with the U.S. Department of Housing and Urban Development, the U.S. Department of Treasury and the Consumer Financial Protection Bureau on September 30 at 11:00 am ET to learn about tools and information you need to help the people you serve to learn more about and apply for Emergency Rental Assistance resources.

Registration is required, and the webinar will be recorded. If you have any questions, please send an email to [email protected].

Registration Open – Center on Knowledge Translation for Disability and Rehabilitation Research 2021 Online Conference: Research Results for Policy Outcomes

Register today for the Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) 2021 Online KT Conference: Research Results for Policy Outcomes.

The free virtual conference occurs across three afternoons during one week: 1:00 – 5:00 pm Eastern each day on October 25, 27, and 29, 2021. 

The conference is designed for grantees, other stakeholders of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), and interested researchers and practitioners. Global experts will address a range of policy-relevant topics, including: 

  • Why is it important to engage policy-oriented stakeholders early, and what are good ways to do that?
  • What are the best ways to share information with policymakers?
  • What are examples of research-informed policy?

The conference also provides opportunities to network with other KT experts and researchers. 

Follow the Center on KTDRR on Facebook and Twitter for regular updates, and join the conversation using the #KTDRR21 hashtag. 

Questions? Email Tracy Bauman at [email protected]

NCIL Mourns the Loss of Marilyn Golden

The staff and governing board of the National Council on Independent Living (NCIL) are saddened by the death of our friend and colleague, Marilyn Golden. She was a key figure in the disability rights movement and her tireless work to protect people with disabilities from legislation that could end our lives prematurely has saved countless people from an early death. We join the Independent Living community in mourning this great loss and share the following tribute from the Disability Rights Education & Defense Fund in remembrance of Marilyn.

In Memory of Marilyn Golden

Disability Rights Education & Defense Fund

Marilyn Golden, senior policy analyst for the Disability Rights Education & Defense Fund (DREDF), died at home on September 21, 2021, surrounded by her family. A long-time disability rights advocate, she played a key role in the development, passage, and implementation of the Americans with Disabilities Act of 1990 (ADA). Her advocacy molded and shaped accessibility in the United States and improved architectural access and standards worldwide. She spent more than three decades working to see that the ADA was implemented and enforced, and teaching others the value of disability civil rights via, and beyond the law.

“Working on the ADA was one of the most important experiences of my life,” said Marilyn when asked about the impact and evolution of the ADA in 1999, “and it is something I’ll never forget. Something I treasure and value–to both have such an incredible experience and also to make a contribution.”

And contribute, she did.

From her leadership on both the development and implementation of the ADA, to the unglamourous, nitty gritty details she steadfastly injected into statutory guidance and regulation, to the people she trained and gently mentored every step of the way, our friend and colleague Marilyn Golden changed for the better how we use public spaces, design buses, trains, planes, and boats, and create equitable transit services. She also thought that assisted suicide was dangerous public policy for disabled people and her opposition never faltered, even in the face of powerful forces working for legalization.

Action Alert: Submit Your Comments on SSI to the Senate!

Yesterday, the Senate Finance Subcommittee on Social Security, Pensions, and Family Policy held a hearing on Supplemental Security Income (SSI). The purpose of the hearing was to focus on ways to improve the SSI program. See more information about the hearing, “Policy Options for Improving SSI”

The SSI program is meant to provide financial help to disabled people and older adults to meet their basic needs. However, many of the program rules haven’t been changed in decades, and they do not reflect the cost of living in 2021. Because of this, a majority of people on SSI are living in poverty. The SSI program needs to be updated, and we are hopeful that Congress will take this opportunity to make real change.

The Senate Subcommittee is allowing the public to submit “statements for the record” about this hearing and the SSI program. These statements will let Congress know there is strong support for making improvements to SSI. The statements will help them understand how badly these changes are needed. Statements must be submitted by Tuesday, October 5, 2021. It is important for Congress to hear from all of us, so please share this with your networks, and CILs, please share this with your consumers!

Social Security Works has put together a website with sample statements you can personalize. We have also included sample talking points and information about how to submit a statement below.

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NCIL Executive Director Selected for Ibram X. Kendi’s Antibigotry Convening

The National Council on Independent Living (NCIL) is pleased to announce that its Executive Director, Reyma McCoy McDeid, has been selected to serve as a Fellow for Dr. Ibram X. Kendi’s Antibigotry Convening.  Dr. Kendi, author of the best-selling book, How to be an Antiracist, is the founder of the Center for Antiracist Research at Boston University, which is home to the Antibigotry Convening, a program that “aims to define bigotry in structural terms, examine the ways that structural bigotry harms diverse communities, generate an antibigotry policy report, and motivate an antibigotry movement. The project will involve a series of virtual workshops in the Fall of 2021, and will culminate in a virtual symposium in January of 2022.”


As the sole representative of a disability organization to participate in the Antibigotry Convening, Reyma further positions NCIL as a wayshower at the intersection of race and disability.  From Reyma: “This is an incredible opportunity- not only for NCIL, or the disability community, but for society at-large because we are finally starting to see that not meeting the needs of racially marginalized disabled people- either unintentionally or intentionally- is a form of ableism, as discussed by Dr. Kendi and Rebecca Cokley earlier this summer.  For many in IL, this is a way of looking at ableism that might feel unfamiliar.  But, if you’ve ever wondered why your CIL has struggled to engage with racially marginalized consumers, then not understanding how the disability experience for racially marginalized consumers- including how ableism manifests in their lives- may be a part of the issue.  I look forward to taking what I learn during my time as a Fellow with the Antibigotry Convening to further support NCIL’s member network in providing the Core Services to racially marginalized consumers in ways that are transformative- both for consumers, but for IL, as a movement.”


More information on the Antibigotry Convening can be found by visiting the website.