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Independent Living News & Policy from the National Council on Independent Living

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Registration Now Open for NCIL’s 2015 Annual Conference!

July 27-30, 2015; Grand Hyatt, Washington

Alt text: Generation ADA: Rise Up! 2015 Annual Conference on Independent Living (Image: red power fist outlined by a black circle)Because of the tremendous buzz surrounding this year’s Annual Conference on Independent Living, we are opening registration and hotel reservations early. We’ll still be publishing our Annual Conference Guide with complete details on this year’s Conference, but you can also find the information you need to plan your trip right now at ncil.org.

Visit our 2015 Annual Conference web page for:

  • Complete registration details
  • Hotel information and reservations links
  • Basic Conference Agenda

All registrations received and paid before April 29, 2015 are eligible for the Early Bird registration rates.

Apply to be an ABA Business Law Section Diplomat

By Jason Goitia

The ABA Business Law Section Diplomat program is now accepting applications until May 2016. I am a former Diplomat and now chair of the Section’s Lawyers with Disabilities Involvement subcommittee of the BLS Diversity & Inclusion Committee.

NCIL members are encouraged to apply. Please visit the link above for more information, including the selection process.

How to Ask for More Than Old Socks and Underwear: Your Ingenious Nonprofit

Logo - Karen Eber Davis ConsultingBy Karen Eber Davis

The Goodwill CEO concluded his talk with a plea for donations: “We need your old socks and underwear.” Unfortunately, when many of us ask for help, we ask for “castoffs.” What do I mean? Even though we solve issues and offer communities amazing solutions and opportunities, we ask for too little to do our work.

This column focuses on processes that ingenious nonprofits use to increase their income. This month we consider our collective nonprofit mindset. What beliefs make the ingenious nonprofit stand out? One thing that makes them stand out is their willingness to insist that the value of their work be recognized. This mindset influences what they say and do, and why others partner with them and share resources. In short:

  • People partner with you because of your words and deeds.
  • Our beliefs determine our words and the conviction in our voice.
  • By sharing the importance of their nonprofit’s work, ingenious nonprofits engage people.
  • In turn, some of them invest time, money, and resources that create nonprofit abundance.

Two Realms at Once

Our culture places nonprofits in two realms simultaneously. On the one hand, nonprofits are special, endearing, and dare I say transcendent. We hope nonprofits will help us reach our highest aspirations. We esteem nonprofits that call to our hearts, energize us with possibilities, and stretch our imaginations.

Nonprofits solve mighty challenges—helping homeless families, supporting recovering addicts, and installing water pumps in distant villages. Others encounter, solve, and balm our most challenging problems. They guard our health, educate our children, and expose us to art. Nonprofits deserve the esteem they receive and should be placed in the “top-floor” realm.

However, nonprofits are often assigned to a second realm. This realm includes being less than competent, being ruled by passions, and requiring different standards. These “standards” include being:

  • Judged by the amount of spent on overhead—not results.
  • Required to charge less than for-profits in many government contracts.
  • Constrained by public opinion about how often supports can be requested, while everyone readily accepts the grocer’s weekly flyer.
  • Willing to accommodate low-quality services and employees.

For example, a business person calls a community foundation, “Can you find Sam, our manager, a nice nonprofit to run?” This implies that since Sam fails to meet the corporation’s demands, Sam will readily help the blind to see, balance a tricky budget, and keep an independent board on track. (Wisely, the foundation declines.) It is likely that you’ve also been the recipient of “pro-bono” services —which were a guise for someone who needed to practice their skills. Instead of top floor status, some even those within the sector, assign the sector and nonprofits to the bottom basement realm.

How did we get here? In part, because from the outside, the sector looks simple. Even though it looks simple (how hard can it be to do good?) it’s not. For example, unlike businesses and governments who seek one primary income stream, nonprofits manage seven. (For more, see my book, 7 Nonprofit Income Streams: Open the Floodgates to Sustainability!) When a CEO, with a background that included service as a CFO for a hospital, begins leading a healthcare nonprofit, he’s challenged. He expected that, given his expertise, the budget would be easy to balance. “I learned, I could easily balance the budget if I reduced critical services.”

Words Matter: Ingenious Nonprofits Ask for More Than Old Socks

Thankfully, the culture’s top floor thinking outweighs the bottom basement mindset. People give money. They donate used goods. Millions buy Girl Scout cookies and write checks. Often these gifts are not spare change or castoffs. Hurrah for everyone who gives, and for you, because you asked for these investments. To reach our goals, we must do more. To reach our high aspirations, we must:

1. Claim Our Place in the Leader’s Circle. Nonprofits tackle tough problems that corporations and governments shun. They solve dilemmas, inspire, and transform communities—often innovatively and with limited resources. Help nonprofits do more good work. Remove one of your burdens: instead of accepting, or worse, assigning yourself basement realm status, recognize the sector, your organization, and yourself for leadership. Take your place at the leadership table.

2. Bottom Basement Thinking Calls for Education. You’re not going to change the minds of everyone who asks about overhead (see one of my articles about overhead here), but we can educate those closest to you about the need to invest in infrastructure. We can educate them on how to ask better questions about results. Say, “Years ago all we had was overhead, now we have much better tools to show our results.” Then provide them the data and stories that prove it. Start with your inner circle.

3. Ask For More. Big problems require big solutions. If you ask for too little, you can’t create results that move the needle. One reason nonprofits are underfunded is because we ask for too little. We ask for used underwear and socks. Ingenious nonprofits ask for more. While they don’t always get what they ask, over time they receive more—enough for it to make the critical difference. Enough for them to standout as successes. Be bold.

Conclude your talks with a plea for help. “To solve the challenges our mission calls us to fix, we need your best. Your best dollars, and your best hours. Together we can change the world.”

High School Students with Disabilities Are invited to: A College Prep Forum

Everything you wanted to know about college… But didn’t know to ask!

  • February 28, 2015, 1 p.m.-5 p.m.
  • University of Baltimore School of Law
  • 1401 North Charles Street Baltimore, MD 21201

Sessions will include: Paying for college (Financial Aid), getting accommodations, traveling independently and independent living

Hear from college students and young professionals with disabilities and other experts about:

  • Financial aid
  • Requesting disability accommodations
  • Independent living and travel
  • And how to survive college!

This is a free event but students are required to RSVP.

For more information contact: Katie Carroll, [email protected] or call 240-638-0065.

This event is sponsored by Maryland Department of Disabilities, IMAGE Center, and Independence Now

VSA / Kennedy Center for the Performing Arts Offers Opportunity to Host Exhibition of Young Emerging Artists with Disabilities!

VSA and the Kennedy Center for the Performing Arts would like to offer you the opportunity to host an arts exhibition featuring work by 15 emerging young artists with disabilities (ages 16 – 25), titled The Journey. It can come to your community at almost no cost to you because of the generous support of Volkswagen Group of America and the Kennedy Center’s Office of VSA and Accessibility.

This professionally produced exhibit – highlighting the skills, abilities and talents of these young artists on the cusp of their careers – will be on tour for one year starting in February 2015. It can easily be one of the many events you present in your community celebrating the 25th Anniversary of the Americans with Disabilities Act. The Exhibit Catalogue (PDF) has images of the artwork, sizes and medium, and an artist statement from each young artist. (Please contact [email protected] for alternate formats of this document).

This tour exhibit gives visibility to the work of artists with disabilities throughout the United States, cementing their work in the broader context of the history, art, and culture of the American—as well as global—experience.

If you are interested, would like more information about the financial support that is available, or would simply like to talk to someone about how to bring this exhibit to your community, please feel free to contact Rachael Nease at (202) 416-8823 or by email at [email protected].

NCIL Fundraiser: AmazonSmile

When you shop at AmazonSmile, Amazon donates 0.5% of the purchase price to the National Council on Independent Living. Bookmark the link http://smile.amazon.com/ch/74-2291620 and support us every time you shop.

Organizer’s Forum: Ferguson, Black Lives Matter, Racism, and Disability Communities

Tuesday, December 16, 1:00 – 2:00 p.m. Eastern

  • Call-in: 1-860-970-0300
  • Passcode: 193134#

Speakers:

  • India Harville, a teacher, artist, educator, and activist, working in racial justice and disability justice
  • A speaker from Showing Up for Racial Justice, a network of white anti-racist ally groups
  • Anita Cameron, activist in ADAPT and Not Dead yet, blogger at AngryBlackWomyn

It will be challenging to get into these topics in an hour, but we’d like to take the opportunity of this call to educate ourselves a little on what’s going on around the country and what can we all do to fight racism. Please join us to hear from insightful speakers and think about what’s next.  [Read more…]

NCIL Mourns the Passing of Ki’tay Davidson

On December 2nd, Ki’tay Davidson passed away in his sleep in Los Angeles, CA. The fact that so many of you knew Ki’tay is a testament to the leadership, outreach, and love he showed to the movement. For those of you that did not, Ki’tay was a young, African-American, transgender man with a disability who was out and proud. He worked across movements to connect the disability rights movement with the LGBTQA communities, people of color, young people, and more. Ki’tay recognized that, like himself, many individuals are members of multiple communities and that we must work together to be inclusive and make change. Just 22 years old, Ki’tay had already made himself indispensable to our movement.

Ki'tay D. Davidson smiles for the camera on a sunny beachKi’tay created #DisabilitySolidarity and the @dissolidarity twitter account in the wake of Michael Brown’s killing in Ferguson, MO. Through @dissolidarity, his presence across social media, and tireless work, Ki’tay was instrumental in creating conversation around the intersection between disability and people of color. He worked on these issues with so much passion and confidence because he knew there was no other way. He knew that people with disabilities who are also people or color and / or LGBTQA, and / or other multiply-marginalized communities are much more likely to face violence in their lives, including at the hands of law enforcement. He reminded us that these vast, festering problems are disability rights issues.

In his honor, we pledge to be a part of these conversations and support the work of all disability advocates. If you would like to show your respect for Ki’tay, please visit the For the Love of Ki’tay D. Davidson GiveForward page and consider donating to support his family by contributing to his memorial services. Please also visit @dissolidarity on Twitter, check out #DisabilitySolidarity, and be a part of the conversation. Ki’tay had begun a lifetime of tremendous work. We must all be a part of it and do our piece if we are to achieve his vision that #LoveWins.

NCIL Emergency Preparedness Subcommittee Presents A New Document: Building Relationships with Local Emergency Management

The following document, entitled “Building Relationships with Local Emergency Management”, has been created by the Emergency Preparedness Subcommittee of the National Council on Independent Living. Our purpose with this document is to provide you with a guideline for ensuring that people with disabilities are provided with appropriate and accessible services before, during and after a disaster.

Our country has experienced devastating disasters in recent years. Hurricanes Katrina, Rita and Ivan killed hundreds of individuals in Louisiana, Mississippi and Texas, the majority of whom were people with disabilities. Thousands of individuals with disabilities who were forced to evacuate have never returned. Many ended up in institutional settings. Super Storm Sandy devastated New Jersey and New York. Again people perished because they were not adequately served with disaster response and relief. In 2014 we have experienced destructive tornados, wild fires, flooding, and blizzards. Even after years of hard work in building relationships, we still dealt with inaccessible and inadequate services.

We must aggressively address the inadequacies of the emergency preparedness and response system in this country. The Emergency Preparedness Subcommittee is doing just that, but we need your help. We have developed good, working relationships with federal agencies tasked with providing disaster relief and response. NCIL has Memorandums of Understanding with the Federal Emergency Management Agency, the American Red Cross, and Portlight Strategies. We are working closely with them to develop better systems of service. Finally, the disability community is well represented on several national committees and task forces and our voices are being heard.

However, disaster relief is as much of a local issue as it is a national issue. FEMA cannot deploy to a disaster site until and unless they are asked to respond by state and local emergency managers. The American Red Cross relies on their state and regional managers to respond and deploy as needed. This is where we need your assistance. In order to ensure that people with disabilities are being adequately served, we must be involved on a local level. The best and most effective way for that to happen is for you, your CIL and/or SILC to develop relationships with the emergency response entities in your state, city, county or parish. Active involvement in task forces, at meetings, trainings and conferences is imperative.  [Read more…]

Remember to Register for SILC Congress!

The deadline for early registration is on December 15, 2014 for SILC Congress. If you haven’t had a chance to register, please do so, and please pass this on to anyone who may be interested. The planning committee looks forward to seeing everyone in San Diego in January. 

The website to register and for information is: www.silccongress.org