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Wrap Up: NCIL 2015 Annual Conference on Independent Living

Generation ADA: Rise Up! 2015 Annual Conference on Independent Living (Image: red power fist outlined by a black circle)Contents

Introduction

There aren’t enough words to describe the feeling of excitement and passion that was everywhere during NCIL’s 2015 Annual Conference on Independent Living. We held our largest conference ever, broke all membership records, welcomed an exponentially increased number of young leaders, and were joined by hundreds of disability rights supporters for a March to the Capitol that literally stretched for miles. It was incredible.

We want to thank each and every one of the advocates that attended the 2015 Annual Conference on Independent Living. This year’s conference was outstanding because of your presence and participation.

We would also like to thank our sponsors, who are listed below along with links to their websites for those who wish to follow up or did not have the opportunity to attend this year’s conference.

Please read on for further details. If you attended the Conference but did not submit an evaluation on-site, please take a few moments to tell us about your experience.

Photos Now Available!

We are very happy to announce that all 1,987 pictures from NCIL’s 2015 Annual Conference on Independent Living are now available on Flickr. We apologize that we do not have the capacity or knowledge to caption every picture. If you see a picture of yourself or others you know, please caption it for the benefit of all. New this year: we’ve created an album of select (captioned) photos that capture the overall feel of the 2015 Annual Conference. If you would like a specific photo added to this collection, please caption the photo in the comments or email [email protected] with the link and a description. You can comment on photos using a Flickr / Yahoo account. Special thanks to Michael Clegg for his amazing photos and, as always, thanks to our members, who made these photographs what they are: the story of our people gathering in our nation’s Capital to bring about equality and freedom for people with disabilities!

Youth Power & Promise: #GenerationADA

In honor of the 25th anniversary of the Americans with Disabilities Act, NCIL was committed to engaging and supporting those who grew up after the ADA passed. Thus, the theme and title for the 2015 NCIL conference was Generation ADA: Rise Up. This year’s conference was filled with approximately 100 youth from all across the country and Japan. All week, a diverse and passionate cohort of young people with disabilities were leading and participating in workshops and engaging the political advancement of the Disability Rights and Independent Living Movement. The youth leadership and cross-generational community building were ever present and a monumental success for NCIL and the wider community. In fact, if one word could be used to describe the youth involvement for the 2015 NCIL conference, it would be electrifying!

From leading the march to the rally at the US Capitol, to building community bonds at youth sessions and social events, to becoming active members of NCIL, the youth presence at the NCIL conference was stronger and larger than ever. NCIL’s dedication to Generation ADA was further proven when the NCIL membership voted Felicia Agrelius onto the NCIL Board! Felicia is a young disability and social justice activist and student from California. Lastly, the youth concluded the conference with powerful testimonies that filled the entire audience with empowerment and energy. One by one a youth members went to the microphone to express how much being a part of the disability community and movement has impacted their personal lives. Moreover, countless young folks shared the importance of taking back what they had learned at NCIL to share with their local communities and organizations.

Overall, the youth did more than observe the work of others. Instead, they rose to the challenge and showed the world that members of Generation ADA are ‘leaders of today’.

NCIL March, Rally, and Hill Visits

2015 was a record-breaking year, and nowhere was this more obvious than at Tuesday’s Annual March and Rally – the biggest in NCIL’s history! Conference attendees were joined by hundreds of local advocates as we all braved the scorching heat and marched through the streets of Washington.  With our youth attendees leading the way, over 1,000 advocates took over the streets and made our voices heard as we demanded our civil rights!

The March took us to the reflecting pool of the Capitol Building where attendees listened to remarks from passionate advocates and members of Congress during the Annual Rally.  Speakers included 16 incredible activists from around the country, as well as 18 members of Congress.  This year we also had the opportunity to hear from several youth advocates who brought incredible insight and talent to the event, making it even more clear that #GenerationADA is here, and they are ready to lead!

Advocates included:

  • Kelly Buckland
  • Jensen Caballo
  • Allie Cannington
  • Bruce Darling
  • Mark Derry
  • Keri Gray
  • Keith Gurgui
  • Steve Higgins
  • Andy Imparato
  • Lou Ann Kibbee
  • Ari Ne’eman
  • Mike Oxford
  • Jon Paré
  • Flip Polizzi
  • Colleen Starkloff
  • Stephanie Woodward

Members of Congress included:

  • Congressman Bradley Ashford (D-NE)
  • Congresswoman Suzanne Bonamici (D-OR)
  • Congressman Brendan Boyle (D-PA)
  • Congressman Danny Davis (D-IL)
  • Congressman Robert Dold (R-IL)
  • Congresswoman Tammy Duckworth (D-IL)
  • Congresswoman Donna Edwards (D-MD)
  • Congressman Gene Green (D-TX)
  • Congressman Steny Hoyer (D-MD)
  • Congressman Hank Johnson (D-GA)
  • Congressman David Jolly (R-FL)
  • Senator Mark Kirk (R-IL)
  • Congresswoman Cathy McMorris Rodgers (R-WA)
  • Senator Bernie Sanders (I-VT)
  • Congresswoman Jan Schakowsky (D-IL)
  • Congresswoman Kristen Sinema (D-AZ)
  • Congressman Mark Takano (D-CA)
  • Congressman Paul Tonko (D-NY)

The 2015 Rally was a wonderful opportunity to celebrate the disability community’s achievements over the 25 years since the ADA was passed.  But it was also a time to reflect on the many areas of discrimination we still face.  Several speakers talked about the fact that 25 years after the ADA, many of our brothers and sisters are still locked away in institutions.  For them, the protections of the ADA are almost meaningless- so introduction of the Community Integration Act has to be a priority.  Speakers also discussed other important issues like employment and poverty, police violence against people with disabilities, and ratifying the UN Convention on the Rights of Persons with Disabilities (CRPD).

After the rally, NCIL members headed to the hill to visit their elected officials. Nearly every member of Congress was visited by NCIL advocates to push for action and support on issues that impact people with disabilities in communities all over the country.  Advocates talked with their Senators and Representatives about the desperate need for IL funding, NCIL’s position on SSDI reform, and concerns about the Murphy bill.  People also talked about difficulties finding affordable, accessible housing and reliable transportation options.  And advocates from all over the country urged their members of Congress to support and/or co-sponsor the Community Integration Act’s introduction!

NCIL’s Annual March, Rally, and Hill visits are always a highlight of the conference, but this year was truly exceptional.  Thank you to all of our advocates for making this the best – and biggest – year ever!

Annual Council Meeting

Elections for officers to NCIL’s Governing Board were first on the agenda. Lou Ann Kibbee of SKIL in Hays, Kansas was re-elected to serve as NCIL’s President through 2017. Roger Howard of LINC in Boise, Idaho was re-elected to serve as NCIL’s Treasurer through 2017. Regional Representatives are elected in shifts, according to the year; even-numbered regions elect their representatives in even-numbered years and odd-numbered regions elect their representatives in odd-numbered years. This year, the following individuals were elected by the members in their region to represent them on NCIL’s Governing Board:

  • Sarah Launderville, Executive Director of the Vermont CIL in Montpelier, Vermont was re-elected to serve Region 1 (States served: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont)
  • Jan Derry, Executive Director of the Northern West Virginia CIL in Morgantown, West Virginia was re-elected to serve Region 3 (States served: Delaware, District of Columbia, Maryland, Pennsylvania, Virginia, West Virginia)
  • Maureen Ryan, Executive Director of the Wisconsin Coalition of ILCs in Madison, Wisconsin was re-elected to represent Region 5 (States served: Illinois, Indiana, Michigan, Minnesota, Ohio, Wisconsin)
  • Roger Frischenmeyer, Independent Living Specialist at Prairie Independent Living Center in Hutchinson, Kansas was re-elected to serve Region 7 (States served: Iowa, Kansas, Missouri, Nebraska)
  • Sheri Burns, Executive Director of Silicon Valley Independent Living Center in San Jose, California was re-elected to represent Region 9 (States served: Arizona, California, Hawaii, Nevada, American Samoa, Guam, Northern Mariana Islands)

In addition, there were three Member-at-Large positions up for election at this year’s Annual Meeting. The following individuals were elected to serve as Members-at-Large on the Governing Board through the 2017 Annual Council Meeting:

  • Felicia Agrelius, AAPD Intern, student at Scripps college, and disability advocate from California
  • Mary Margaret Moore, Executive Director, ILC of the North Shore & Cape Ann, Salem, Massachusetts
  • Bruce Darling, Executive Director, Center for Disability Rights, Rochester, New York

There was also a one-year Member-at-Large position available to fill a vacancy on the Governing Board through the 2016 Annual Council Meeting.

  • Jessie Lorenz, Executive Director of the Independent Living Resource Center San Francisco.

Awards

The Awards Banquet is a very special event at the NCIL Conference every year. The banquet is our opportunity to come together as a community and thank advocates and allies that have fought tough battles during the past year to advance the rights and independence of people with disabilities.

Regional Advocacy Awards

  • Region 1: Ed Paquin
  • Region 2: Keith Gurgui
  • Region 3: Ann McDaniel
  • Region 4: Deborah Cunningham
  • Region 5: Rickielee Benecke
  • Region 6: Brenda Stinebuck
  • Region 7: Kathy Hoell
  • Region 8: Nick DeSutter
  • Region 9: Ted Jackson
  • Region 10: Melva Heinrich

National Awards

  • Max Starkloff Lifetime Achievement Award: Shoji Nakanishi
  • President’s Award: Tom Olin
  • Corey Rowley National Advocacy Award: Lou Ann Kibbee
  • Frank Harkin Memorial Award: Rebecca Cokley
  • Diana Viets Award: Jensen Caraballo

Resolutions

Two Resolutions were approved by the NCIL Membership:

Sponsors

Top Sponsor Logos - Centene, Google, Anthem, Verizon

Soldiers for Justice

Champions

Revolutionaries

Movers & Shakers

Activists

Catalysts

NCIL also thanks the following donors: The Shepherd Center; Yoshiko Dart

Liberation to Leadership: The Role of CILs in Transforming Communities

CIL-NET Presents… A Brand-New National Onsite Training

September 15-17, 2015; Berkeley, California

IL-NET Logo - CIL-NET + SILC-NETLiberation to Leadership – Deadline Extended: Register by Tuesday, September 1!

Centers for Independent Living are in the business of facilitating empowerment for people with disabilities. Empowerment leads to full community participation and citizenship. Authentic citizenship leads to leadership and valued community roles, which impact systems, organizations, and the lives of others.

Join us in Berkeley, California this September to learn how you can develop a process to empower and educate your consumers to seek and thrive in leadership positions. You’ll learn directly from advocates and staff at different Centers how to best support consumers as you teach them about ableism and its intersection with other forms of structural oppression; how to move beyond internalized ableism and embrace disability pride and self-advocacy; and a proven model for helping consumers move into leadership positions, like community organizing and joining local boards, committees, and councils.  [Read more…]

Summer 2015 NCIL Legislative & Advocacy Priorities Booklet Now Available!

NCIL logo - National Council on Independent LivingThe summer edition of NCIL’s Legislative & Advocacy Priorities is now available at the NCIL website.

This document contains specific information on the national legislative and policy priorities identified biannually by the NCIL membership, including funding for the Independent Living Program, healthcare and long-term care, housing, transportation, education, and more.

Please share this document with your Center or SILC staff, board, and the Senators and Representatives who serve your districts.

Contact NCIL for further information on the issues discussed in this document.

Additionally, for those attending the 2015 Annual Conference on Independent Living, electronic versions of conference materials are available at our conference web page. As always, hard copy alternate formats will be available onsite.

 

Take Advantage of Our New Partnership! Give Your Business the ADP Advantage

ADP Logo - In the business of your success

HR. Payroll. Benefits.

New clients receive special rates on ADP® Payroll Services as a NCIL Member.*

As a NCIL member and by working with ADP, you can choose from a range of right-sized payroll and employee management solutions to suit the needs of your business today and grow with you tomorrow. Select the right fit for your business with:

  • Cash management tools that help you make smarter use of your financial resources
  • Integrated solutions that help with compliance challenges
  • Optional employee solutions that can help you boost productivity by attracting & engaging team members

Plus, NCIL members can receive special pricing and may also be eligible to take advantage of ADP’s current promotions.*

Want to learn more? Contact your ADP Sales Representative.  [Read more…]

Kennedy Center Invites NCIL Conference Attendees to the Jean Kennedy Smith Series: DISABILITY + CULTURE

Are you interested in Disability history, art, and culture? Then you should attend the first Jean Kennedy Smith Series: DISABILITY + CULTURE, celebrating the 25th Anniversary of the ADA and the 40th Anniversary of VSA on Sunday, July 26. This historic event will take place at 8:00 p.m. in the Concert Hall of the Kennedy Center in Washington, DC. It will include tributes to the ADA and Ambassador Jean Kennedy Smith, interviews with young or emerging artists by PBS’s Judy Woodruff, followed by a musical treat. This event is ticketed and not open to the public – it is by invitation only and we are pleased to offer NCIL conference attendees the opportunity to attend. 

If you would like an invitation, please send an email with your first and last name and your email address to [email protected]. When you receive the invitation, you will need to RSVP to reserve up to 4 tickets. Tickets are limited and reservations are available on a first come, first served basis and will be taken through Tuesday, July 21 or until the event is sold out, whichever comes first.

You also have the opportunity to attend the 25/40 Celebration July 16-26, 2015! The Kennedy Center in Washington D.C. is commemorating the 25th anniversary of the Americans with Disabilities Act and the 40th anniversary of VSA with 11 days of free programming – performances and exhibits!

The Smithsonian Festival ADA will take place in the National Museum of American History from July 24-26. More information is available at www.2540celebration.com.

Frozen Revisited: The Risk of Not Talking Risking – Your Ingenious Nonprofit

By Karen Eber Davis

Perhaps you, like millions of other people saw the Oscar winning movie Frozen. Frozen tells the story of two sisters, Anna and Elsa. Elsa is an unusual child: she has the ability to freeze things. When Elsa creates snow slides, both sisters have a blast. When Elsa accidently freezes Anna, trouble ensues. Some nonprofits leaders are like Elsa. They inadvertently freeze opportunities that offer them a better life.

Let me explain.

Logo - Karen Eber Davis ConsultingNonprofit leaders shun risks. Who can blame them? Avoiding risks protects current assets. Leaders avoid negative public feedback if the risk doesn’t succeed. Shunning risks avoids possible long-term paybacks. For example, some nonprofits still struggle with real estate decisions make before the Great Recession.

However, when leaders avoid all risks, they freeze and eventually kill opportunities.

Of course, no one sets off to deliberately freeze an opportunity with a sure payoff. It’s just that, in advance, it’s impossible to know outcomes. Risk requires calibration and thoughtful considerations. But, since leaders are busy and fear the unknown, leaders just say no—and freeze things.  [Read more…]

Free Webinar: Disability, Food Insecurity, and SNAP: Addressing the Needs of Americans with Disabilities

July 28, 2015; 1:00 p.m. Eastern

Poverty, hunger, and food insecurity disproportionately affect Americans who have communicative, mental, or physical disabilities. For these children, adults, and elders, the Supplemental Nutrition Assistance Program (SNAP) serves as a vital support. The Food Research & Action Center (FRAC) is hosting a webinar on July 28 at 1:00 p.m.  EST to highlight the current status of food insecurity among persons with disabilities, the role of SNAP in the safety net for people with disabilities, and recommendations for strengthening SNAP’s supports for this population. The webinar will accompany the release of a new FRAC report, SNAP Matters for People with Disabilities. Register online.

Last Chance: Pre-Event Registration for NCIL’s 2015 Annual Conference on Independent Living Closes at Midnight This Monday!

All pre-event registrations for the 2015 Annual Conference on Independent Living must be received by Monday, July 13 at 12:00 midnight, Eastern Time.

Generation ADA: Rise Up! 2015 Annual Conference on Independent Living (Image: red power fist outlined by a black circle)Individuals may still register onsite, but please note that onsite registration fees differ from standard registration fees and plan accordingly.

Pre-event registration rates:

  • NCIL Member: $265
  • Non-member: $385
  • Daily Rate: $115-160 / day

Onsite registration rates:

  • NCIL Member: $305
  • Non-Member: $430
  • Daily Rate: $210 / day

Register today and save!

To register, use the NCIL online store, which gives you the ability to register up to three attendees with one transaction and accepts Discover, American Express, Visa, and MasterCard, or use the printable registration form (PDF or plain text).

Additional details are available on our conference webpage.

This year’s Annual Conference on Independent Living is shaping up to be one of the most exciting in recent history, and we can’t wait to see you there!

Documentary About Multiple Chemical Sensitivity and Invisible Disabilities Needs Support in Final Week of Fundraiser!

The Sensitives Kickstarter - bit.ly/SensitivesDoc - A women opens the door to a van covered in aluminumm foil insideThere is only a week remaining for the filmmakers of The Sensitives to reach their fundraising goal on Kickstarter. If they are short, by even $1, they don’t get a penny of the pledges! 

They are a third of the way funded and need help! Please visit bit.ly/SensitivesDoc, watch their beautiful teaser and pledge what you can. No pledge is too small and if they don’t raise their funds by July 15th, these stories won’t get shown!

Films like these don’t get made very often so please join us in supporting the filmmakers finish this documentary.

FEMA Announces Notice of Funding Opportunity for Fiscal Year 2015 Homeland Security National Training Program/Continuing Training Grants Program

On June 29, 2015, Federal Emergency Management Agency Administrator Craig Fugate announced the release of the Notice of Funding Opportunity, or NOFO, for the Fiscal Year (FY) 2015 Homeland Security National Training Program (HSNTP) Continuing Training Grants (CTG) program with a total $11,521,000 available for awards in four focus areas.

The HSNTP/CTG program develops and delivers innovative training programs that are national in scope and play an important role in the implementation of the National Preparedness System by supporting the building, sustainment, and delivery of core capabilities essential to achieving the National Preparedness Goal (NPG) of a secure and resilient nation. The FY 2015 HSNTP/CTG program focuses on the following four training areas: Cybersecurity; Hazardous Materials; Countering Violent Extremism; and Rural Preparedness.

This highly competitive program attracts on average 80 applicants from state, local, tribal, and territorial governments, along with eligible non-profit organizations to include colleges and universities. In 2014, 88 eligible organizations competed and six HSNTP/CTG awards were made. Read more information on the 2014 awards.

For more information on this opportunity, and to download an application package, go to www.grants.gov. On Grants.gov, you can find this opportunity by selecting Browse Agencies, and then select Department of Homeland Security. In the Basic Search Criteria, in the CFDA box, enter 97.005; from there, select the Continuing Training Grants (CTG) Program Notice of Funding Opportunity (NOFO).

FY 2015 HSNTP/CTG applications are due no later than August 10, 2015. Submissions must be made through Grants.gov.