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Independent Living News & Policy from the National Council on Independent Living

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New Discounted Accessible Guestrooms Available at the Fairfield Inn & Suites!

Logo - Solidarity - Everybody In - Annual Conference on Independent Living 2016A new block of discounted accessible guestrooms is now available at the Fairfield Inn & Suites Washington, DC / Downtown, six blocks from the NCIL Conference at the Grand Hyatt. These reduced rate rooms are available to NCIL attendees starting at $219 / night plus tax. All of the ADA accessible rooms have sold out at the Grand Hyatt and Marriott Metro Center, so we’ve opened up this new block of 8 accessible and 2 standard guestrooms.

To book a room at discounted group rate at the Fairfield Inn by phone, call 1(888)-236-2427 and use the code ‘ACI’ or state our group name, ‘NCIL Annual Conference’. You can also book rooms directly using NCIL’s custom link – Fairfield Inn.

Additional details are available on our conference webpage. See you in July

Announcing: The 2016 NCIL Policy Briefing

Thursday, July 14, 2016; 3:00 – 4:30 p.m. Eastern

Register online.

NCIL is happy to announce our 11th Annual Policy Briefing.

This important presentation will to bring advocates up-to-date on national issues and federal policies that affect people with disabilities and provide participants with question and answer sessions with national leaders to ensure you have in-depth information on the issues you care about most.

The Policy Briefing will ensure that we are fired up and prepared for NCIL’s 2016 Day on the Hill! For those of you who will not be at the 2016 Annual Conference on Independent Living, this will provide you with valuable and timely information that you can use in your community. Please share this training announcement far and wide so that our issues reach many people.

This teleconference is free for NCIL Members. There is a $25.00 registration fee for Non-Members, per call-in site. Fee does not apply per participant in group, provided the group uses the same conference line. 

The Policy Briefing will be available via teleconference and CART (captioned) webcast. You must register by 12:00 Noon Eastern on July 14 to participate in the call.  [Read more…]

We Want to Learn More About Your Advocacy Strategies!

Dear Advocates,

We are conducting a survey to learn more about advocacy approaches you or your Center has used in working with individuals with disabilities or with systems change. We plan to use the information you provide in this short, 18 question survey to help update the Action Letter Portfolio, which is a training tool to help CIL staff and disability advocates write effective advocacy letters. We value your participation and information, and would like to provide you access to the updated advocacy letter writing product once the research project is completed. We greatly appreciate it if you can take some time to complete the survey, and if you would share this survey invitation with your co-workers.

This study has been approved by the Kansas University Lawrence IRB (#STUDY00002960).

Sincerely,

Alice Zhang and Glen White

Research and Training Center on Independent Living at the University of Kansas

Notice: CILs and SILCs Must Be a 2016 NCIL Member by Monday, June 27 in Order to Vote at the Annual Council Meeting!

Sign Up Today!

NCIL’s Standard Operating Procedures require that CILs and SILCs pay their dues in full thirty (30) days prior to the Annual Council meeting to be eligible to vote at that meeting. If your organization has not yet joined or renewed for 2016, you must sign-up and pay your dues in full by 12:00 Midnight on Monday, June 27, 2016 in order to vote at the Annual Council Meeting.

If you do not join or renew by June 27, your organization will not be able to vote for the Governing Board members and Resolutions that guide NCIL’s actions and priority issues.

Don’t worry if you can’t make it to the Conference, you can still have a designated NCIL member vote for you by proxy.

Make sure your voice is heard: sign up today!

You can purchase your membership using our secure online store, or by using the printable membership form (PDF).  [Read more…]

Nominate a Mentor or Program for the Disability Mentoring Hall of Fame by May 1, 2016!

Established in December 2014, the mission of the National Disability Mentoring Coalition (NDMC) is to increase the awareness, quality, and impact of mentoring for individuals with disabilities across the nation. Member organizations share core values and align with the Coalition’s initiatives to streamline communication, reduce duplication of efforts, increase mentoring opportunities, improve recognition of successful programs and mentors, and improve outcomes for youth and adults with disabilities.

The Coalition launched the Susan M. Daniels Disability Mentoring Hall of Fame in September 2015 to honor those who are making a significant difference in the lives of youth and adults with disabilities through mentoring and to raise awareness about the importance of mentoring for individuals with disabilities. The Hall of Fame’s namesake, Susan M. Daniels, devoted her life to improving the lives of others with disabilities. As a person with a disability who achieved enormous professional and personal success, she had significant impact as a senior policy maker and as a mentor to hundreds of individuals. To celebrate the 25th anniversary of the Americans with Disabilities Act (ADA), the NDMC named 25 outstanding leaders as the first inductees into the Susan M. Daniels Disability Mentoring Hall of Fame. These inductees were selected for their demonstrated commitment to mentoring and for the impact of their contributions on improving the lives of people with disabilities.

Nominations for the Class of 2016 are currently being accepted until May 1, 2016.

Please spread the word! Thanks for supporting the Coalition’s work and for helping to increase awareness of the Susan M. Daniels Disability Mentoring Hall of Fame.

Liberty Resources Voices Concerns Over Proposed NCQA Standards for CIL Accreditation on Case Management for Individuals Receiving Long Term Services and Support

It is imperative that organizations such as NCQA work collaboratively with CILs should they shape policies that impact the work we do.

Dear Community Stakeholders,

With the continued rollout of Medicaid funded Managed Long Term Services and Supports (MLTSS), states and programs across the nation are redefining how quality is measured. As a result of these changes, the National Committee for Quality Assurance (NCQA) has put forth proposed standards for accreditation on Case Management for Individuals Receiving Long Term Services and Support. We at Liberty Resources, Inc. (LRI), the Center for Independent Living (CIL) in Philadelphia, do not agree with the standards put forth by NCQA. These standards could impose medically based measurements on CILs as we develop working partnerships with Managed Care Organizations accredited by NCQA HEDIS standards. For MLTSS, it is imperative that states focus on “quality of life” measurements for participants residing in a community setting.

The CILs were conceived in response to a medically based social framework that did not understand choice and independence for Consumers with disabilities. Utilizing a social model based on Consumer Driven Choice and Independent Living Philosophies, CILs provide core services and connect Consumers to available resources in their community. At LRI, we pride ourselves on our advocacy and Nursing Home Transition services. With twenty-five years of experience providing services and advocating for Consumers with disabilities, we would like to provide measurement recommendations for consideration.  [Read more…]

Make Your Event Sponsorships Stick without Backbreaking Labor – Your Ingenious Nonprofit

By Karen Eber Davis

Karen Eber Davis - HeadshotYour board chair introduces Rob, the sponsor of the day. Polite applause ushers Rob to the microphone. Rob captures the room when he shares how glad his firm is to sponsor the event. He announces three surprising facts about his firm before issuing a challenge to find a quiz on the table to submit for a prize, and he introduces the speaker. As the event concludes, Rob and his coworkers linger to meet even more people. Back at the office, they compare notes, distribute a lot of prizes, and make a dozen follow-up appointments.

Rob and his firm engage in sticky sponsorships. Sticky sponsorships squirt glue all over participant’s minds. The glue dries clear and flexible with the sponsor’s name glowing through. Sticky sponsorships generate new relationships. They move existing ones upward in the customer acquisition process. Stickiness creates a positive association between the event, the nonprofit, the business, and potential customers. Sticky sponsorships return every dollar and more that sponsors invest in them.  [Read more…]

Early Bird Registration Rates for NCIL’s 2016 Annual Conference End at Midnight April 29!

July 25-28, 2016; Grand Hyatt, Washington

Logo - Solidarity - Everybody In - Annual Conference on Independent Living 2016Open our Annual Conference Guide (in PDF or plain text) to find everything you need to know about the 2016 Annual Conference.

Then, register online or by using the printable Registration Form (PDF or plain text). Online registration gives you the ability to register up to three attendees with one transaction and accepts Discover, American Express, Visa and MasterCard.

All registrations received and paid before April 29, 2016 are eligible for the Early Bird registration rates.

This year, you can use NCIL’s custom links to reserve your room at the Grand Hyatt or Marriott Metro Center.

Additional details are available on our Conference webpage. See you in July!

Memorandum: 2016 Regional Advocacy Awards

To: NCIL Members
From: NCIL Regional Representatives
Date: April 8, 2016

Nominate someone from your region online.

Each year at the Annual Conference, NCIL recognizes individuals and / or organizations for outstanding advocacy efforts. NCIL encourages you to nominate someone in your region who you believe is deserving of this award. Please take a few minutes to complete the nomination form by May 17, 2016.

Purpose of the NCIL regional advocacy award: To recognize individuals or groups/organizations within each region for outstanding systems advocacy efforts consistent with independent living goals and philosophy at a national, state, or local level.

Eligibility for the regional advocacy award: The nominee does not have to be a member of NCIL. In the event that the winner is not a member of NCIL, upon receiving the award he or she will receive a complimentary Individual Membership to NCIL for the remainder of the year.

Selection process: The Regional Representative will solicit written nominations from membership within their region. Regional Representatives are strongly encouraged to solicit input from the members in their region in selecting the award winner. To the greatest degree possible, the selection process should be free of actual or perceived conflicts of interest. One award winner will be selected from each region.

Recognition: Regional Advocacy Awards will be presented to the winners at NCIL’s 2016 Annual Conference on Independent Living, during the Awards Luncheon at Noon on Wednesday, July 27, 2016.

NCIL Statement on SCOTUS: Give the President’s Nominee Fair Consideration with Hearing and Vote

On March 16, 2016 President Obama nominated Merrick Garland, Chief Judge of the U.S. Court of Appeals for the D.C. Circuit, for the vacancy in the U.S. Supreme Court. Now it is the Senates’ Constitutional duty to give the President’s nominee fair consideration with a hearing and a vote. Below is the National Council on Independent Living’s statement on the SCOTUS nomination process.

March 25, 2016

Dear Senators of Congress,

The National Council on Independent Living writes to express our support of President Obama nominating a potential Supreme Court Justice to succeed Justice Antonio Scalia. At this point, President Obama has nominated Chief Judge of the U.S. Court of Appeals for the D.C. Circuit, Merrick Garland. Now it is the Senates’ Constitutional duty to give the President’s nominee fair consideration with a hearing and a vote.  [Read more…]