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Independent Living News & Policy from the National Council on Independent Living

Employment & Social Security

Action Alert: Tell Your Senators Not to Gut the ABLE Act!

Last Wednesday, the House overwhelmingly passed the Achieving a Better Life Experience (ABLE) Act, H.R. 647 by a vote of 404-17. The Senate is expected to take action this week, and with 74 Senate co-sponsors, it is likely that it will pass.

The ABLE Act allows individuals with disabilities and their families to save funds in an ABLE Account, a tax-free savings account that can go towards housing, transportation, home health, and other eligible expenses. This will allow individuals to accumulate assets without jeopardizing eligibility for Medicaid or Social Security benefits.

However, NCIL has significant concerns regarding who can access and open an ABLE Account. The ABLE Act has a lot of potential, but because of recent changes, only individuals who acquire a disability before the age of 26 are eligible for an ABLE Account. This means that individuals who acquire a disability at or after that age will not be helped by the ABLE Act at all.

We need Congress to hear from us and understand that the ABLE Act is important for all people with disabilities, regardless of when we acquire our disability! Accumulating assets is just as important for people who acquire a disability at or after the age of 26 to be able to improve their economic status and earn their way out of poverty.

Because of the advocacy of NCIL members and other disability rights groups, our concern regarding substantial gainful activity has been resolved, and individuals who meet the definition of disability are able to maintain an ABLE Account regardless of engagement in SGA. We need to make sure our voices are heard on this critical issue as well. The Senate needs to hear from you before they vote on the ABLE Act! Call your Senators and let them know that this needs to be fixed in the current (or future) Congress. Let them know that ALL people with disabilities should be eligible for an ABLE account!

Naming Ableism in Our Fight for Career Access

CareerACCESS, a community-driven proposed program of reforms to SSI that will provide an alternative benefits program for youth with disabilities, has a new blog that features stories of youth with disabilities across the US and their experience with SSI.

One recent installment is called “Naming Ableism in Our Fight for Career Access” by NCIL Youth Fellow Allie Cannington. Check out Allie’s story below, and read more stories and take action at: www.ourcareeraccess.org/index.php/blog.

Photo of Allie CanningtonOctober’s Disability Employment Awareness Month may be over, but the struggle for equity and opportunity in the world of employment for people with disabilities continues. With abhorrently high rates of unemployment and poverty amongst the disability community, especially for young adults with disabilities, there are countless complexities to be understood, addressed and challenged by community members, leaders, advocates, and allies. Some of these complexities, as you know, fall within the Social Security disability programs, especially the restrictions under Supplemental Security Income (SSI) benefits. In order for individuals to receive SSI, they must prove that they are “unable to do any substantial gainful activity”. Moreover once individuals receive SSI, they are merely surviving: with somehow balancing financial assistance, health care, personal attendant care and accommodation requirements. Thus, poverty persists. And unfortunately, no matter how many employment efforts exist, transitioning off of SSI often means people with disabilities have even fewer supports in place for survival, let alone self-determination. This is due to the harsh reality that as soon as individuals work more than the capped amount, their benefits are removed. And so, there is this impossible, oppressive bind: even though folks receiving SSI can technically work, they are restricted in earning or saving enough to actually build assets.

So the realities are clear: there are systems in place that facilitate patterns of poverty and unemployment for the disability community. Yet, throughout existing discourse related to advocacy and reform, there is rarely mention of ableism and how SSI’s current state perpetuates ableism. To quickly define ableism: it is the societal dominance and power of able-bodiedness at the expense of people with disabilities. In other terms, ableism is the oppression of and against people with disabilities. When we are advocating for reforms such as CareerACCESS, we must name ableism as a clear reason for needing systematic change. When the disability community faces political, social, and economic injustice, our fight is at a loss when we don’t incorporate analysis, strategy, and action that name ableism. For example, our current Social Security disability programs’ strict requirements regarding who may be “unable to do any substantial gainful activity” perpetuates ableism. In part, this continues ableism because the criteria is based on able bodied terms of “productivity”.  Therefore, if a young person with a disability falls under such criteria, their ability to build assets and develop professionally is significantly limited. This, often arbitrary, measurement can be the determinant for someone’s quality of life and survival (e.g. access to Personal Care Attendants). Ableism further embeds the system because if you are deemed “fit” to work beyond SSI criteria, your benefits will be removed due to the assumption that other assets should cover disability accommodations and other needed supports. This is often untrue. It ignores the inherent diversity of disability and diversity of needed accommodations, especially in our society where ableism runs rampant.

In order to grasp the power of CareerACCESS, we must understand that CareerACCESS strategically disrupts ableism by securing young disabled people their SSI, through an alternative benefits program. This alternative program provides access to professional and personal development. Right now, this is not possible. Young adults with disabilities cannot receive their benefits while also in-depth exploring the world of work and professional development. This opportunity for young adults with disabilities to work and professionally develop, while still receiving their benefits challenges the policy’s ableist measurements. Therefore, the paths created by CareerACCESS facilitate greater opportunity for young adults with disabilities to develop workplace skills, experience and networks that can lead to greater anti-ableist economic equity.

New Stories by Youth at the CareerACCESS Blog

CareerACCESS, a community-driven proposed program of reforms to SSI that will provide an alternative benefits program for youth with disabilities, has a new blog that features stories of youth with disabilities across the US and their experience with SSI.

One recent installment is called “Receiving SSI: Are You Safe? Or Suffocating?” by D’Arcee Neal. Check out D’Arcee’s story below, and read more stories and take action at: www.ourcareeraccess.org/index.php/blog.

Receiving SSI: Are You Safe? Or Suffocating?

By D’Arcee Neal

Photo of D’Arcee NealAs I write this blog, I’m sitting in my first office that I’ve been at for almost a year now. Thinking about the path that got me to this place is one that is reminiscent for almost all millennials these days, but I’d add that for those of us with disabilities, the hardship is only magnified by systemic inadequacies and limitless red tape.

Social security is for many, a needed relief to help mitigate circumstances where too little money would put you on the streets, starving. In places like North Carolina where I used to live, it provided me a comfortable moment to breathe after school when I had lost my job. But I have cerebral palsy. I don’t drive. And SSI was making me lazy, and complacent in a place where I knew I could do better. After my first internship with NASA in DC, in a city providing me with autonomous transportation anytime, anywhere, I knew I could never go back to living in a place where I called friends for a ride just to leave the house. After studying abroad in Germany, traveling in Europe and completing my Masters in London, I never had any intention of staying in North Carolina, but for those of us who want to branch out after school, current SSI rules make that all but impossible.

For the next two years and some change, I was unemployed and harder still, I lived in DC, on SSI. Being restricted on income is hard enough without a sufficient work history to support you. But when you’re trying to live and find work in the second most expensive city in America? You learn quickly about what my friends and I call “The Struggle.” I lived off a medium suitcase, and a twin bed in a shared room on the edge of the metro where my rent was 85% of my check, because if you wanted to be mobile in the city, you had no choice. I made $20.00 last two weeks for food and giving up 8 bucks for a Netflix account was my only luxury, because if not, I would’ve went crazy. But SSI was there, and I made it work until I worked enough temp jobs and internships to get myself hired to a corporate position. But without the money to save, I calculated trips, planned out resources and depleted myself of a social life completely. This works for some people, but I knew what I wanted out of my life and being tied to SSI was strangling me emotionally.  [Read more…]

Action Alert: Tell Senator Reid to Withdraw the Nomination of Robert Brown to the National Council on Disability!

NCIL Members,

We need you to tell Senator Harry Reid (D-NV) that we have a problem with his decision to nominate Mr. Robert Brown of Nevada to the National Council on Disability (NCD).

Background

NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. The Workforce Innovation and Opportunity Act of 2014 (WIOA) transitions NCD from 15 members appointed by the President to nine members. The President shall appoint five members with the other four members appointed by Congress, two from the House and two from the Senate leaderships.

Senator Reid has chosen Mr. Robert Brown, a man who does not support the ADA Guiding Principles of equal opportunity, full inclusion, independent living, and economic self-sufficiency.

Mr. Brown has publicly stated in an editorial in the Las Vegas Review Journal, “Some utopian academics would like to eliminate Section 14(c). They believe people with severe disabilities are being unfairly exploited and that all workers should be paid at least the minimum wage. On the surface, this position seems reasonable. Upon rational examination, it is nonsense.” Read the editorial.

The NCD has proactively worked on a phase-out plan to end Section 14(c) and subminimum wage practices. NCIL has been a leader in the dismantling of segregated living as well as segregated employment. As the lead disability rights organization that assisted in crafting the Workforce Innovation and Opportunity Act of 2014, NCIL took a strong position and supported the Section 511 provision. This provision works to end the use of subminimum wage employment for people with disabilities. WIOA also provided a legislative definition for Competitive Integrated Employment and made Customized Employment a part of federal statute within the Rehabilitation Act. None of these things are supported by Mr. Robert Brown of Nevada!

Take Action

We need to send letters telling Senator Reid that his choice is offensive and against everything the disability community and the Independent Living Movement stand for.

Please use our sample letter, fill in your organization’s information, and send it to Senator Reid this week.

  • FAX your letter to: 202-224-7327
  • To email your letter, go to www.reid.senate.gov and click the envelope at the bottom of the page.

Stay tuned for further information.

PEAT Survey on Online Job Seeking

The Partnership on Employment and Accessible Technology (PEAT) is conducting a survey to gain a better understanding of accessibility needs related to online job seeking.

Take the survey

Join Our Partner, the LEAD Center, for a Webinar on CILs and AJCs: Strategic Partnerships that Lead to Better Employment and Economic Advancement Outcomes

  • Wednesday, September 24, 2014; 3:00 – 4:30 p.m. Eastern
  • Register online

LEAD Center Logo - www.leadcenter.orgA growing number of Centers for Independent Living are providing employment services to meet the needs of their customers and to improve the employment and economic advancement outcomes of individuals with disabilities. Join us to learn about findings and tools from a LEAD Center Demonstration Project completed with five Centers for Independent Living, the National Council on Independent Living and the National Association of Workforce Development Professionals to improve collaboration and coordination between the CILs and AJC management and staff.

Target Audience: Workforce Development Professionals, Policy Makers, Individuals with Disabilities and related stakeholders.

Please note: This webinar will be captioned and a link to download the presentation will be sent to registrants prior to the webinar. To request any other reasonable accommodations, please contact Brittany Taylor at [email protected] within 48 hours of the webinar.

Subminimum Wage Protest: Americans with Disabilities Protest SourceAmerica for Blatant & Egregious Discrimination

  • Date: August 28, 2014
  • Time: 11:00 a.m. – 1:00 p.m.
  • Place: SourceAmerica / 8401 Old Courthouse Road / Vienna, VA 22182

Interview opportunities for the media:

  • Workers who have received subminimum wages
  • Parents of children with disabilities
  • Leaders of disability organizations participating in the protest
  • Dr. Fredric K. Schroeder (former commissioner of the Rehabilitation Services Administration)

On Thursday, August 28, members of the National Federation of the Blind, the National Council on Independent Living, ADAPT, the Association of People Supporting Employment First, Little People of America, and TASH will participate in a protest outside of the headquarters of SourceAmerica. The informational protest will raise awareness of SourceAmerica’s discrimination against workers with disabilities. SourceAmerica discriminates against workers with disabilities by permitting its qualified nonprofits to pay workers with disabilities less than the federal minimum wage – in some cases only pennies per hour.

Join Our Partner, the LEAD Center, for a Webinar on Best Practices in Employee Retention and Return-to-Work: Lessons Learned from Employers

LEAD Center Logo - www.leadcenter.orgDisability management and prevention is an important component in retaining talented employees and reducing turnover costs. In 2013, the LEAD Center studied a large successful U.S. Corporation to learn about and document effective retention and return-to-work policies and practices. This is a major focus for the U.S. Business Leadership Network as well as the Families and Work Institute, which just published their 2014 National Study of Employers. Join us for a review of lessons learned including:

  • Employer retention and return-to-work best practices.
  • How workforce professionals can partner with employers to promote employee retention and return to work.
  • How to identify employers with policies that support customized employment.
  • Target Audience:
  • Workforce development professionals, employers, policymakers, individuals and related stakeholders

Please note: This webinar will be captioned and a link to download the presentation will be sent to registrants prior to the webinar. To request any other reasonable accommodations, please contact Brittany Taylor at [email protected] within 48 hours of the webinar.

USBLN and National Council on Independent Living Formalize Strategic Alliance

For Immediate Release
Contact: Anita Howard
July 15, 2014
Phone: (800) 706-2710
[email protected]

US Business Leadership Network Logo - USBLN - Disability At WorkWASHINGTON, DC (July 15, 2014) – The US Business Leadership Network® (USBLN®) Executive Director Jill Houghton and National Council on Independent Living (NCIL) Executive Director Kelly Buckland have signed a strategic alliance agreement to formalize their mutual collaboration to drive disability inclusion awareness and to advance, improve and expand employment outcomes for individuals with disabilities.

The USBLN is a national 501(c) (3) non-profit, non-partisan business-to-business network that helps business drive performance by leveraging disability inclusion in the workplace, supply chain, and marketplace. The USBLN serves as the collective voice of nearly 50 Business Leadership Network affiliates across the United States, representing over 5,000 businesses. It provides business members with opportunities to network with other businesses and to gain information and valuable resources on disability inclusion practices across the entire business, to enable them to:

  • Recruit and retain the best talent regardless of disability;
  • Broaden their supplier bases to include diverse supplier groups, such as Disability-Owned Business Enterprises (DOBE®s), including service-disabled veteran-owned businesses, certified through the USBLN Disability Supplier Diversity Program® (DSDP), the nation’s leading third party certification program for disability-owned businesses; and
  • Increase their companies’ share of diverse established and emerging markets.

“The USBLN alliance with NCIL strengthens our commitment to work together to support the employment and advancement of people with disabilities; the preparedness for work of youth and students with disabilities; marketing to consumers with disabilities; and contracting with suppliers with disabilities through the development and certification of disability-owned businesses. We are confident that our collaboration with NCIL will move the needle forward in working with employers to recognize the value and talent that people with disabilities bring to the workplace, supply chain and marketplace,” stated Jill Houghton, Executive Director, USBLN.

The National Council on Independent Living is the longest-running national cross-disability, grassroots organization run by and for people with disabilities. NCIL represents thousands of organizations and individuals from every state including: individuals with disabilities, Centers for Independent Living (CILs), Statewide Independent Living Councils (SILCs), and other organizations that advocate for the human and civil rights of people with disabilities throughout the United States. There are currently over 700 physical locations across America actively providing Independent Living services to people with disabilities.

“NCIL and USBLN have been discussing this Strategic Alliance for some time and I am very excited to see it become a reality. USBLN is such a strong force in increasing employment for people with disabilities and NCIL is proud to be working with them,” said Kelly Buckland, NCIL Executive Director. To learn more, visit: www.ncil.org.

About the US Business Leadership Network (USBLN)

The US Business Leadership Network (USBLN) is a national non-profit that helps business drive performance by leveraging disability inclusion in the workplace, supply chain, and marketplace. The USBLNserves as the collective voice of nearly 50 Business Leadership Network affiliates across the United States, representing over 5,000 businesses. Additionally, the USBLN Disability Supplier Diversity Program (DSDP) is the nation’s leading third party certification program for disability-owned businesses, including businesses owned by service-disabled veterans. www.usbln.org

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CareerACCESS Launches New Blog Featuring Stories By Youth

Erin TatumCareerACCESS, a community-driven proposed program of reforms to SSI that will provide an alternative benefits program for youth with disabilities, has launched a new blog that is featuring stories of youth with disabilities across the US and their experience with SSI.

The first installment is called “Uphill Climb: SSI and Finding Employment” by Erin Tatum.

Growing up with cerebral palsy, I always thought of my disability as a set of physical limitations that I had to overcome. Determined to prove that kids with disabilities could do everything that their able-bodied peers could do, I attended mainstream school and never had an aide in class. [Read more…]