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Independent Living News & Policy from the National Council on Independent Living

Civil Rights & the ADA

NCIL, Not Dead Yet, and Five Other National Disability Groups Submit Friend-of-the-Court Brief in New Mexico Assisted Suicide Appeal

Santa Fe, New Mexico (PRWEB)

If assisted suicide had been legal in the past, even if it were supposedly only for those with ‘terminal’ conditions, many of us would not be here today.

– Kelly Buckland, National Council on Independent Living

On August 22, 2014, Not Dead Yet submitted a Disability Rights friend-of-the-court brief in support of the New Mexico Attorney General’s appeal seeking to overturn a district court ruling that the New Mexico constitution contains a right to assisted suicide (Morris v. King, Case No. 33,630, Court of Appeals of the State of New Mexico). Six other national disability rights organizations joined in the brief: ADAPT, the American Association of People with Disabilities, the Autistic Self Advocacy Network, Disability Rights Education and Defense Fund, the National Council on Independent Living, and the United Spinal Association (collectively “the Disability Rights Amici”).

The Disability Rights Amici are represented by Lara Katz of Montgomery and Andrews in Santa Fe, New Mexico, and Steve Gold, a nationally known disability rights attorney based in Philadelphia. The Motion that accompanies the brief states why the groups believe that the disability rights perspective should be considered by the Court of Appeals:

“Their members, as well as other people with severe disabilities, are the potential targets of physician-assisted suicide. Their members have faced family and physicians who have actively deprived them of fundamental rights and liberties that others take for granted. They have members whose physicians have mistakenly told them they have six months to live, but have lived far beyond that prognosis. . . . Some members’ families have been urged by physicians to remove life-sustaining treatment at a critical juncture and, after their families fought such recommendations, have survived and gone on to value their lives. Some members initially contemplated suicide following a severe and life-threatening injury, but were denied that option under prior law, and went on to value their lives.”

Each of the Disability Rights Amici brings a specific perspective to the policy debate about assisted suicide. For example, the primary mission of ADAPT is to ensure that seniors and people with disabilities are not forced into nursing facilities, but have the choice to receive consumer directed long term care services in their own home. “If the only alternative to death that those in power offer people who require assistance is poverty and segregation in nursing facilities, then it makes no sense to talk about assisted suicide as a ‘choice’”, said Bob Kafka, an ADAPT organizer based in Austin, Texas.

“As a person with a disability and a wheelchair-user, I’m proud that the disability community has overwhelmingly opposed the legalization of assisted suicide,” said Marilyn Golden, senior policy analyst with the Disability Rights Education and Defense Fund in Berkeley, California. “It’s a deadly mix with our broken, profit-driven health care system, where financial pressures already play far too great a role.”

Many people with disabilities acquire them as a result of accidents or trauma, and their prognosis is often uncertain in the early stages. “If assisted suicide had been legal in the past, even if it were supposedly only for those with ‘terminal’ conditions, many of us would not be here today,” said Kelly Buckland, executive director of the National Council on Independent Living. “I might not be here today, and I’m grateful that assisted suicide was not legal back then, and I’m committed to keeping it that way.”

“There is significant evidence that proponents of physician assisted suicide have never intended to stop at the terminally ill,” noted Ari Ne’eman, executive director of the Autistic Self Advocacy Network. “Legislation introduced in New Hampshire in 2014 and prior years includes a definition of terminal illness so broad as to allow for a lethal prescription in response to any condition which shortens lifespan without a known treatment – even if the individual in question might have years or even decades of life remaining. Assisted suicide advocates have been adept at using an incremental strategy by focusing on people who are terminally ill, but their broader policy agenda is already well documented.”

“Our basic position is that when some people get suicide prevention while other people get suicide assistance, and the difference is the person’s age, disability or health status, that’s a problem,” said Not Dead Yet’s president and CEO, Diane Coleman. “It’s a problem of devaluation of people who are being told that others not only agree with their suicide, which is bad enough, but will even help them carry it out. It’s a deadly form of discrimination and, as our brief says, it violates the Americans with Disabilities Act.”

free email subscription to the Not Dead Yet blog is available online.

Remembering Justin…

In honor of Justin Dart Jr.’s upcoming 84th birthday on August 29, 2014, here are a few items on the ItsOurStory.com site you may want to share with your networks.

Farewell Speech by Justin Dart Jr.

Graphic for Justin Dart Jr Farewell Speech - featuring photos of Justin with Yoshiko and leading the NCIL MarchMr. Dart’s final message to the disability rights community, narrated by the late Max Starkloff (5 minutes)

Watch Video

A Vote for Justice

Between 1986 and 1990, Justin Dart Jr. made multiple trips to all 50 United States, eager to document the ongoing struggles of people with disabilities to assert their civil rights.

By bringing these impassioned testimonies before Congress, Dart effectively convinced policy-makers of the need for legal protection of the rights of people with disabilities.

The Americans with Disabilities Act was born.

To date, more than 150 people have helped bring the voices residing in the It’s Our Story archives one step closer to being published in an “accessible to all” format.

View your state’s contributions and consider transcribing a document or two to be published for the 25th Anniversary of the ADA on July 26, 2015.

View Galleries

The 1% ADA 25 Campaign

Beginning on Justin’s birthday, new video vignettes will be released every few days via the It’s Our Story Facebook, Pinterest and YouTube Channel.

Visit the Gallery of New Releases

As part of the It’s Our Story project tireless effort to share and expand the stories of people with disabilities across the United States and the world, It’s Our Story aims to publish 1,000 minutes of some of its most memorable footage on July 26, 2015 — the 25th anniversary of the Americans with Disabilities Act.

On July 26, 2014, The It’s Our Story (IOS) project debuted a new mobile-friendly site that introduces users to thousands of resources, links, and culture. Please take a few moments to experience the power, passion, and pride of our abilities.

View Site: www.itsourstory.com

An Update from the NCIL ADA / Civil Rights Subcommittee: 2014 Annual Conference Activities

The 2014 Annual Conference on Independent Living concluded an interesting year in advocacy for the NCIL ADA / Civil Rights Subcommittee. Co-Chairs Mike Bachhuber and Dara Baldwin were present for the entire conference and participated in the Legislative & Advocacy Update held on the day prior to the March, Rally & Hill Visits. In this session, they brought forth the information worked on throughout the 2013-2014 advocacy year. This information can be found in the NCIL Legislative & Advocacy Priority Booklet: Summer 2014 (PDF or plain text).

The Co-Chairs started with appreciations to all the Subcommittee members and the Task Force Co-Chairs. The Mental Health Task Force, Voting Rights Task Force, and Violence and Abuse Task Force are part of the advocacy work being done by NCIL through the ADA / Civil Rights Subcommittee. After hearing about this work, the Co-Chairs presented a strategy about what to discuss with members of Congress and discussed how to report back what happened in the meetings.

At the Conference, the Co-Chairs of this Subcommittee were available to discuss issues at the Regional Caucuses. They also attended the March, Rally and went to meetings on the Hill with members of Congress with other NCIL members. The message delivered to members of Congress was “thank you for the work done so far on the Americans with Disabilities Act (ADA) but we need more!”

We know that we have much work to do with the Administration implementing the ADA, such as getting the US Department of Justice to better enforce many laws affecting people with disabilities. One area of concern is in the enforcement of voting rights for people with disabilities. We also encouraged Congress to continue to fund the many programs used to assist with enforcement and the civil rights of people with disabilities.

On the final day of the 2014 Conference, the Legislative & Advocacy report-out was done, and NCIL members went on 49 Senate visits and 145 House visits. This is amazing advocacy work! NCIL has a huge presence here in DC and we must continue this legacy.

If you are passionate about any of these issues, we welcome you to join the ADA / Civil Rights Subcommittee. Mike and Dara will remain as Co-Chairs and look forward to working with past and new members for the 2014 -2015 advocacy year. To join the Subcommittee, you must become an individual member of NCIL, then fill out the online form to join one of our committees.

One of the Co-Chairs will reply and get you involved. We want to thank all NCIL members for your great advocacy and we look forward to another year of continued work.

Dara Baldwin & Mike Bachhuber
Co-Chairs of the NCIL ADA / Civil Rights Subcommittee

Free Live Stream Seminar – Abuse Against People with Mental and/or Developmental Disabilities: Physical, Sexual and Verbal Abuse in Institutional or Community Settings

Members of NCIL’s Task Force on Violence & Abuse will be tuning in to the following live stream. We are proving this information for NCIL members who may also be interested in this topic (no endorsement implied).

This seminar will address the potential causes, ramifications, and preventive measures related to the abuse of people with mental and/or developmental disabilities.

Audience: The general public; people with disabilities, their doctors, nurses, facilities staff, caretakers, families, and friends; legal community; mental and social service providers

  • Monday, August 18, 2014; 1:00 p.m. – 4:30 p.m. (Note Time Zone)
  • Koret Auditorium, San Francisco Public Library
  • 100 Larkin St., San Francisco CA 94102
  • Enter at 30 Grove Street and proceed to lower level
  • Live stream instructions

List of Speakers:

  • Dr. Clarissa Kripke, Clinical Professor of Family and Community Medicine, UCSF School of Medicine; Director, Office of Developmental Primary Care  [Read more…]

CIL-NET Presents… The New Frontier of Disability Rights: Introduction to Child-Custody Rights of Parents with Disabilities

CIL-NET Presents… A National Teleconference & Webinar

August 27, 2014; 3:00 – 4:30 p.m. Eastern

Register online or by using the printable registration form (PDF).

IL-NET Logo - CIL-NET + SILC-NETPresented by: Kelly Buckland, Ella Callow, and Megan Kirshbaum of the National Council on Independent Living and Through the Looking Glass

Among our most basic human rights is the right to have and raise children. Yet we know that parents with disabilities are regularly denied the opportunity to raise their children in their own homes, specifically because of their disability. Whether you or your consumers face discrimination by the courts, family members, landlords, or others, you’ll want to sign-up for this introductory presentation to learn the types of discrimination parents with disabilities typically face, and the resources, legal strategies, and other support you can provide to help them exercise their right to be proud parents with disabilities to their children.

Target Audience:

  • Any CIL staff who work directly with parents or prospective parents with disabilities.  [Read more…]

Financial Abuse and Exploitation: What to Look For – An Update from the NCIL Violence & Abuse Task Force

Unfortunately, financial abuse and exploitation of seniors and people with disabilities is on the rise. Financial exploitation is the unauthorized use of another person’s money for personal profit or gain and it is illegal in every state. Some examples are:

  • Cashing checks without authorization / permission
  • Forging another person’s signature
  • Misusing or stealing a person’s money or possessions
  • Coercing or deceiving a person into signing documents such as a contract or will
  • The improper use of conservatorship, guardianship, or power of attorney

People are usually surprised to find out who the most frequent abusers are, and sadly family and friends usually top the list. Others include caregivers (both paid and volunteer), professionals hired by the victim (i.e. contractors, lawyers, accountants), or strangers (either met in public or those who come to the home). So it is important to recognize the signs and symptoms of abuse:

  • Sudden changes in bank accounts or banking practices
  • Unexplained withdrawals of a lot of money by a person accompanying the victim
  • Adding names on a bank signature card  [Read more…]

ADA Legacy Tour Kicks Off This Friday, July 25, 2014!

On July 25th, 2014, the ADA Legacy Tour officially kicks off in Houston, 1 year and 1 day from the 25th Anniversary of ADA in 2015 (ADA25).

ADA Legacy Project LogoThe long-anticipated ADA Legacy Tour will kick off at Abilities Expo Houston on July 25, 2014 at NRG Center. An 11:30 a.m. press conference will be led by Lex Frieden, renowned disability rights activist and one of the chief architects of the Americans with Disabilities Act. During the press conference, the Office of the Mayor Annise Parker will bestow a proclamation to memorialize the occasion.

The ADA Legacy Tour is a traveling exhibit designed to raise public awareness and generate excitement about ADA25 and is produced by The ADA Legacy Project, Disability Rights Center, ADA National Network, and the Museum of disABILITY History. The year-long, nationwide tour will culminate in Washington DC on July 26, 2015, exactly 25 years after President George H.W. Bush signed the ADA into law.

For additional information and updates, regularly visit adalegacy.com

Action Alert: Invite Your Senators & Representative to Learn About the Discrimination Facing Parents with Disabilities and Their Children this Friday!

On Friday, July 25th from 9:00-11:30 a.m. Eastern, NCIL Disability and Aging Specialist Lindsay Baran will provide testimony at the National Council on Disability’s Congressional Forum: “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children” at the Rayburn House Office Building, Room B-318, in Washington, DC.

2014 marks the 24th anniversary of the passage of the ADA. Many members of the “ADA generation” are now at the age where they want to start families of their own, but find themselves faced with a different kind of discrimination, one that hinders or even prevents adults with disabilities from beginning or raising their own families.

With an increasing number of people with disabilities taking advantage of protections to obtain an education and go to work, combined with a large number of service members returning from tours of duty in Iraq and Afghanistan with newly-acquired disabilities — parents with disabilities continue to be the only distinct community that has to fight to retain and sometimes gain custody of their own children without any other cause.

NCIL was responsible for bringing the issues surrounding parenting with a disability to the attention of NCD, which prompted their 2012 report “Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children”. It is extremely important that we keep elected officials informed and build on our momentum.

Take Action

Please contact your Representative and both your Senators and encourage them to send members of their staff to this forum on one of the most pressing and emerging issues of importance to the disability community in recent years.

More Information

NCIL Endorses Bazelon’s New Report “A Way Forward: Diverting People with Mental Illness from Inhumane and Expensive Jails into Community-Based Treatment that Works”

Source: the Judge David L. Bazelon Center for Mental Health Law / ACLU SoCal

The ACLU of Southern California (ACLU SoCal) and the Judge David L. Bazelon Center for Mental Health Law today unveiled “A Way Forward,” a new report that sets forth recommendations that would allow Los Angeles County officials to establish diversion programs for inmates with mental illness charged with non-violent offenses. Such programs save money, improve public safety by dramatically reducing recidivism, and reduce jail overcrowding.

Los Angeles County’s jail system is the nation’s largest psychiatric institution. On any given day, an estimated 3,200 inmates diagnosed with a severe mental illness crowd the jails. The number of suicides has increased over a two-year span, and inmates with mental illness are more likely to suffer abuse at the hands of other inmates or jail staff. The recidivism rates among inmates with mental illness are extraordinarily high.

Last month, the U.S. Department of Justice (DOJ) found that Los Angeles County violates the constitutional rights of inmates by failing to provide adequate mental health care and appropriate suicide prevention policies. DOJ encouraged the county’s efforts to expand diversion programs for those inmates with mental illness.

Diversion programs direct people with mental illness who have been arrested or are incarcerated for non-violent offenses to effective community-based programs that combine treatment with supportive housing, as well as medication management and employment assistance.  [Read more…]

The Impact of the Disability Community on Elections

What does this fall’s election mean for disability policy? We are invisible – even if we vote if we are not counted in the polls. Candidates do not think people with disabilities are important enough to seek out prior to the election!

Voting is Patriotic - America + FlagOn Thursday July 31st from 1:30-2:45 p.m., the NCIL Voting Rights Task Force will be presenting a workshop at the 2014 Annual Conference on Independent Living called “The Impact of the Disability Community on Elections”. Mark Mellman, of the Mellman Group, which was named the 2013 Pollster of the Year by the American Association of Political Consultants, will present up-to-date information on polling and lead a discussion with workshop attendees. Mellman identifies people with disabilities for some of his clients.

Dr. Lisa Schur of Rutgers’s University will discuss which segments of the disability community voted and which did not in the 2012 elections. She will also talk about the problems faced by people with disabilities in the 2012 elections. The research she will discuss can be found at ncil.org/votingrights.

You will leave this session with an understanding of the power that the disability vote could have on public policy and strategies to increase voter engagement in our own communities. Voter turnout by people with disabilities continues to be less than that of populations without disabilities, yet the disability community represents one of the largest minorities in the country.

However, there are a few exceptions to this disparity. It was reported by Indiana Governor’s Council for People with Disabilities Newsletter, June 2013 “the voting gap between people with and without disabilities was eliminated – 59 percent of each population voted.” and that Indiana remains proactive in addressing these issues.

Other pollsters have also been invited.