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Independent Living News & Policy from the National Council on Independent Living

Announcing the Disability Rights Leadership Institute on Bioethics!

Join us for this exciting and first ever Disability Rights Leadership Institute on Bioethics (DRLIB), where disability rights advocates will gather for two focused days of learning, discussion, and honing our advocacy skills on the key bioethics issues facing the disability community in the United States (some speakers will provide an international perspective as well).

  • April 25 and 26, 2014; 8:45 a.m. – 5:30 p.m.
  • Crystal City Marriott, Arlington, VA (across from Crystal City Metro Station)

This is a groundbreaking event for disability rights advocates to advance the disability rights perspective on bioethics issues, including:

  • withholding medical treatment;
  • assisted suicide laws;
  • reproductive technologies;
  • developing our advocacy strategies on these issues;
  • and more!

Registration Deadlines:

  • Space is limited! Please register as soon as possible.
  • Participants are requested to stay for the full two–day Institute.
  • The Institute registration deadline is March 28.
  • The deadline for hotel registration at the Crystal City Marriott is April 3.

Speakers will include:

  • Liz Carr, Comedian, Actor in a BBC drama series, and NDY activist from the United Kingdom
  • Diane Coleman, President, Not Dead Yet (NDY)
  • Marcy Darnovsky, PhD, Executive Director, Center for Genetics and Society (CGS)
  • Dr. Kevin Fitzpatrick, Director, Euthanasia Prevention Coalition, Europe (EPC Europe)
  • Marilyn Golden, Senior Policy Analyst, Disability Rights Education & Defense Fund (DREDF)
  • Ari Ne’eman, President and co–founder, Autistic Self Advocacy Network (ASAN)


  • Registration for the Institute itself: $175, which will help cover a number of meals (see below) as well as other DRLIB expenses including meeting space, speaker costs, and disability accommodations.
  • Participants must pay their own travel & lodging costs. 
  • Participants must pay for dinners on both days, and Saturday’s lunch.
  • The Institute will cover 2 continental breakfasts, 4 breaks, and Friday’s lunch.

Other Participant responsibilities:

  • Participants will receive written materials in advance and be expected to read them before the Institute.
  • All participants will be expected to avoid wearing perfume, cologne, or other fragrances, and to use unscented personal care products in order to promote a fragrance-free environment.

How to register for the DRLIB:

  1. First, register online for the Institute itself. Note: This event is intended for disability rights activists and people who identify with the disability rights movement. We want to get a sense of who the participants are, so please help us out when you register, by responding to a question about your background or history in disability issues and / or organizations. You will see this question on the on-line registration form.
  2. If you need a hotel room at the Crystal City Marriott, you must book your own hotel reservation. The hotel deadline is April 3. Call (703) 413-5500 and mention our group name, the Disability Rights Leadership Institute on Bioethics. Hotel room rate is $139 per night plus tax.

Accessibility and accommodation needs:

  1. The hotel is wheelchair accessible and is across from an accessible Metro stop. For accommodation needs other than hotel rooms: when you register, there will be an opportunity to specify your disability accommodation needs.
  2. Contact Tim Fuchs (see contact information below). Note: The DRLIB registration deadline of Friday, March 28 is also the deadline for requesting accessibility accommodations.
  3. Participants are advised to use Reagan National Airport if possible. It has an accessible Metro stop, and is closer to the Institute site than the two other airports in the Washington DC area (Dulles and Baltimore). For accessible taxis from National Airport: Call Red Top Cab of Arlington, in advance, at 703-522-3333.

Questions? Contact Tim Fuchs by email at; by phone at (202) 207-0334; toll-free at (877) 525-3400; or by TTY at (202) 207-0340.

The Disability Rights Leadership Institute on Bioethics is sponsored by: The National Disability Leadership Alliance (NDLA); Autistic Self Advocacy Network (ASAN); Disability Rights Education & Defense Fund (DREDF); Euthanasia Prevention Coalition (EPC); the National Council on Independent Living; and Not Dead Yet (NDY).

Find the DRLIB on Social Media:

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