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Independent Living News & Policy from the National Council on Independent Living

Organizer’s Forum: Disability and Bioethics

  • Tuesday, June 17, 1:00-2:00 pm Eastern
  • Call in number: 1-213-342-3000
  • Code: 193134#

Join the Organizer’s Forum for a stimulating discussion on disability and bioethics. The first ever Disability Rights Leadership Institute on Bioethics was held on April 25-26, 2014 in Arlington, VA. Four of the Institute’s presenters will share highlights from their talks on assisted suicide, withholding of life-sustaining treatment, reproductive technologies and wrongful birth / wrongful life litigation. Discuss how the disability rights community can make our voices heard in the public discourse on these issues. Nothing about us without us!


  • Diane Coleman is the founder, president and CEO of Not Dead Yet
  • Marilyn Golden is Senior Policy Analyst at the Disability Rights Education & Defense Fund
  • Marcy Darnovsky, Ph.D., is Executive Director at the Center for Genetics and Society
  • Samantha Crane is Director of Public Policy at the Autistic Self Advocacy Network

If you are interested in joining on Tuesday, please fill out this quick form to give the organizers an idea of who joins the calls.

CART: The call will have real-time captioning (CART). Thanks to the National Disability Leadership Alliance for sponsoring the captioning of this call.

  • Connect to CART
  • Username: forum
  • Password: forum
  • To ask questions via CART: Sign-in to the chat function on the right side of the transcript and type your question. One of the call facilitators will read any questions posted there.

If you need additional accommodations to participate in the call, please let the organizers know as soon as possible.

So you can mark your calendars now, Organizer’s Forums are held on the 3rd Tuesday of every month. If you have suggestions for call topics or presenters for upcoming topics, please email them to or

More Information


The Organizing Workgroup of the National Disability Leadership Alliance hosts these calls the third Tuesday of every month as a resource for disability organizers, in an effort toward building the organizing capacity of the disability community across the country. They generally follow the format of a Welcome followed by 2-3 experts in a given area speaking for a few minutes on their experiences, advice and challenges. The calls include a 20-30 minute question and answer period.

Because we want to maximize the generously donated CART services, we will begin the call promptly at 1:00 pm and end the call promptly at 2:00 pm Eastern time. A few other reminders about call etiquette:

  • Say your name before each time you speak
  • Speak one at a time
  • Speak slowly and as clearly as possible

Jessica Lehman and Diane Coleman
Co-Chairs, National Organizing Workgroup

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