the advocacy monitor

Independent Living News & Policy from the National Council on Independent Living

Independent Living & The Rehabilitation Act

HHS Issues a Historic Notice of Proposed Rulemaking (NPRM) on Section 504 of the Rehabilitation Act of 1973

Section 504 The Rehabilitation Act of 1973 protects people from discrimination and prevents discrimination in programs that receive federal funding.

Yesterday, HHS Secretary Xavier Becerra hosted a press conference to announce a rule proposed by the HHS Office for Civil Rights that would update these regulations. This is the first time these critical regulations will have been updated since they were originally signed in 1977 after 4 years of tireless advocacy and a 28-day protest led by disability civil rights leaders.

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Give Aid to CILs and SILCs Affected by Disasters

As you have likely seen, natural disasters can occur without warning and affect entire populations. Centers for Independent Living, Statewide Independent Living Councils, and people with disabilities in Vermont and Hawaii have recently been affected by flooding and wildfires. Recently, massive rains destroyed Vermont Center for Independent Living and they are currently working to rebuild and provide services once again for individuals with disabilities. Numerous people have been affected by the Hawaii wildfires, and we need to work together to bring them some relief. NCIL will be reaching out to Centers in Hawaii to learn how to best help and allocate funding.

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Action Alert: Keep our Budget Intact!

Call your Representatives in the House and tell them not to cut funding for the Independent Living Program.

The Senate’s draft budget came out at level funding for the Independent Living Program at $128 million. We need you to call your Representatives today and tell them not to cut IL funding.

Read more about the Senate’s draft budget: https://bit.ly/47bi6pG

We particularly need you to call members of the House Committees on Appropriations (https://bit.ly/475VczP). 

To find your Representative’s phone number, visit the House Directory (https://www.house.gov/representatives).  

5 for 5 Logo: Fund Centers for Independent Living - 500 Million; 5 Core Services

IL-NET T&TA Center for Independent Living Presents… A National Webinar: Innovative Transition for Individuals with Mental Health Disabilities

July 12, 2023; 3:00 – 4:30 p.m. Eastern

Register online or reach out to [email protected] for more information.

Leer en español (https://bit.ly/43VbyJH)

The IL-NET National Training & Technical Assistance (T&TA) Center operated by ILRU in collaboration with NCIL, APRIL, and the University of Montana Rural Institute and RTC: Rural, supports CILs and SILCs in building capacity to run strong, effective organizations. This webinar will be a discussion highlighting varied approaches and strategies surrounding transitions and diversions for individuals with mental health and other disabilities who may be at risk for institutionalization.

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CALL FOR VOLUNTEERS: 2023 Annual Conference on Independent Living

Dear Friends of NCIL,

The 2023 Annual Conference on Independent Living is scheduled for July 24-27, 2023, at the Grand Hyatt Washington.

Committed volunteers are critical to this conference’s success. We have wonderful incentives for those who put in volunteer hours.

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2023 NCIL Advocacy Awards

Each year, NCIL recognizes individuals and / or organizations for outstanding advocacy efforts.

Nominees do not have to be a member of NCIL. In the event that the winner is not a member of NCIL, upon receiving the award, they will receive a free one-year individual NCIL membership.

You must be a NCIL member to nominate someone for an award. The deadline to nominate for a NCIL Advocacy Award is May 29, 2023.

Awards will be announced during NCIL’s 2023 Annual Conference on Independent Living (https://ncil.org/ncil2023/).

Diana Viets Memorial Award

Diana was an energetic young woman with a disability who dedicated her life to empowering young people with disabilities to take an active role in the Independent Living movement. Through her work at a Center for Independent Living and the NCIL Board, Diana touched the lives of many youth with disabilities. NCIL wants to acknowledge, honor, and encourage our young leaders who are promoting disability pride, spreading Independent Living philosophy, and fostering the active participation of youth with disabilities in the disability rights movement.

Eligibility: Individuals eligible for this award should be young adults whose work through Independent Living has had a positive impact on youth with disabilities.

Judy Heumann Advocacy Award

Judy was a fierce advocate who dedicated her life to disability rights and independent living. From the Section 504 Sit-In of 1977 to serving in multiple Presidential Administrations, Judy tirelessly pursued disability rights legislation at the national and international level. She was instrumental in the passing of multiple policies and laws including the Individuals with Disabilities Education Act, the Americans with Disabilities Act, and the UN Convention on the Rights of Persons with Disabilities and was a founding member of the National Council on Independent Living. Often considered the “Mother of the Disability Rights Movement”, Judy led our movement with grace and strength. With this award, NCIL will honor Judy’s advocacy legacy and encourage all to continue fighting for independent living rights, inclusion, and disability justice.  

Eligibility: Individuals eligible for nomination are those who have proven to be instrumental advocates in the Independent Living Movement and disability justice community in the past decade at a national level. This awardee will be nominated by the membership of the National Council on Independent Living and if multiple nominations are received, the final awardee will be chosen by NCIL’s Executive Director. Nominees do not have to be a member of NCIL. In the event that the winner is not a member of NCIL, upon receiving the award, he or she will receive a free one-year individual NCIL membership.

IL-NET T&TA Center for Independent Living Presents… A National Webinar: Intergenerational Peer Support

May 17, 2023; 3:00 – 4:30 PM Eastern

Register online or email [email protected] for more information.

En Español abajo.

The IL-NET National Training & Technical Assistance (T&TA) Center operated by ILRU in collaboration with NCIL, APRIL, and the University of Montana Rural Institute and RTC: Rural, supports CILs and SILCs in building capacity to run strong, effective organizations. This webinar will be a panel discussion that will highlight varied approaches and strategies to intergenerational peer support. Specifically, panelists will describe their views on what intergenerational peer support is and how they practice it effectively, the value of intergenerational peer support, and best practices to making connections across generations outside of specific events like conferences or trainings.

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Message from NCIL’s President and Vice President: NCIL Advocacy Committee Restructuring

May 3, 2023

Dear NCIL Members,

We want to express our gratitude for the years of advocacy and support for the National Council on Independent Living (NCIL).

As you may recall, the NCIL Board held a two-day retreat last fall as we prepared to advertise for a new Executive Director and to prioritize activities for the next five years. As part of the recommendations from our consultant, we were asked to consider how we can best balance our limited staff and financial resources within our advocacy department.

While reviewing the incredible amount of work being accomplished through the NCIL Subcommittees, the Board made some broad-sweeping recommendations to focus our efforts so that we can become more efficient on areas that directly impact our membership of Centers for Independent Living (CILs). Key areas of Rehabilitation Act / IL Funding, Housing, Transportation, ADA / Civil Rights, and Healthcare / Long Term Services and Supports (LTSS) will remain as the core of NCIL’s emphasis. So that we can continue to provide support to all areas, we will be consolidating issues within these NCIL Subcommittees so that we can be much more efficient in meeting goals, objectives, and outcomes. All issues will have a greater opportunity for much more support and coordination of efforts.

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Make Nominations for the NCIL Board of Directors by May 19, 2023!

Dear NCIL Members:

NCIL will hold virtual elections for our Governing Board positions this year. NCIL members have an opportunity to nominate an individual to run for each of the following positions on the NCIL Board:

  • President,
  • Treasurer, 
  • three Member-At-Large positions, and
  • Representatives of Regions I, III, V, VII, IX (1, 3, 5, 7 & 9): ncil.org/regions.

If you or someone you know would be interested in running for the NCIL Board, please fill out the nomination form: https://www.surveymonkey.com/r/W7V36LC.

Please carefully review the position descriptions and memorandum (ncil.org/ncil-board-nomination-process), as it will help in considering potential nominees. Also, make sure to share these resources with the individual you are nominating so that they have a clear understanding of what will be expected should they be elected.

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Join NCIL April 26 for A Regional IL Showcase!

Independent Living Regional Showcase. Graphic features stage lighting.
Independent Living Regional Showcase. Graphic features stage lighting.

April 26, 2023; 3:00 – 4:00pm Eastern

Register online or email [email protected] for more information

A forum to meet NCIL’s Regional Representatives and learn what CIL and SILC peers are accomplishing

The National Council on Independent Living (NCIL) is conducting a recurring virtual forum in which NCIL’s 10 Regional Representatives will showcase the successes and accomplishments of CILs and SILCs in their regions. NCIL’s Regional Representatives are members of NCIL’s Governing Board and are elected from among the NCIL members in their respective regions.  

Description

This third forum features Region 2 (New Jersey, New York, Puerto Rico, Virgin Islands) and Region 10 (Alaska, Idaho, Oregon, Washington), but all regions are invited. The forums are open to all NCIL members, all CILs and SILCs, and all IL associations.

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