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Independent Living News & Policy from the National Council on Independent Living

Civil Rights & the ADA

HuffPo Adds Disability Content Page; NCIL Urges Our Members to Sign Petition to Recognize Disability as a Demographic

By Sarah Blahovec, Advocate for greater recognition of the disability community in politics in the media

Sarah BlahovecEarlier this year I successfully petitioned Huffington Post to add a curated disability content page. In the continuing interest of promoting greater visibility of the disability demographic, I have started a new petition targeting some of Washington’s biggest think tanks and advocacy organizations.

Did you know that the Pew Research Center, Center for American Progress, and Human Rights First do not include disability as a demographic in their research and advocacy? It is mind-blowing and upsetting to see that these organizations neglect to recognize the world’s largest minority. It means that the disability rights movement is not recognized as a legitimate social justice movement in the same way that racial and ethnic, LGBT, and women’s rights are recognized (all of these organizations research these topics extensively).

I have written these organizations to ask why they don’t view disability as a demographic to research and serve, and if I’m not met with complete silence, I get the answer that they “don’t have enough resources” to include disability as a demographic. Nearly 20 percent of Americans have disabilities and they don’t have enough resources to study trends and issues within that demographic? I feel like this is one factor that contributes to the fact that disability is almost entirely excluded from policy discussions. While presidential candidates are courting women and including race in their platforms, persons with disabilities aren’t even recognized within the context of issues vital to them, such as healthcare and Social Security. With an absence of information on people with disabilities’ voting trends or interests, it’s no wonder that candidates don’t even recognize that there is a huge voting bloc that they could tap.

I feel like this is a simple change for these massive organizations and is a first step toward greater representation of persons with disabilities in politics. Please sign the petition today!

Action Alert: Bipartisan Budget Act Passed – Now Ask the Senate to Increase IL Funding!

Late last week, the Senate passed the Bipartisan Budget Act of 2015 (BBA) that moved through the House last Wednesday evening. The BBA signifies a huge bipartisan achievement that raises overall funding levels. While funding levels are still dreadfully low, the BBA does address a number of important issues.

First, the BBA provides 2 years of significant sequestration relief by eliminating 90% of the sequestration budget cuts for non-defense discretionary (NDD) programs in 2016 and 60% in 2017. The BBA provides $33 billion of relief for NDD programs in 2016 and $23 billion in 2017. It also provides balanced sequestration relief for defense and NDD by maintaining the parity principle, providing dollar-for-dollar relief.

Earlier this week, we sent an Action Alert with a comprehensive overview of the changes to Social Security. The overview goes through each section and subtitle of Title VIII (Social Security) in depth. Of particular note is that the BBA extends the solvency of SSDI through 2022 by reallocating funds from OASI (Trust Fund), thereby avoiding the 20% across-the-board cuts we have been strongly advocating against. The BBA also requires a demonstration to replace the existing “cash cliff” with a benefit offset of $1 benefit reduction for every $2 earned over a certain threshold. SSA could decide to test one or several thresholds at or below the current level of earnings that constitute a trial work month ($780 in 2015). This demonstration shares similarities but sets different levels than NCIL’s recommendations. Additionally, the BBA increases funding to the Social Security Administration to focus on fraud, oversight, and modernization.

Additionally, the BBA suspends the debt limit until March 2017, successfully avoiding a default by doing so before the November 3 deadline. It also avoids an anticipated 52% increase in Medicare Part B premiums for about one-third of Medicare enrollees. And while it’s still a possibility, the BBA greatly reduces the potential for a government shutdown this year or next year.

While the BBA represents a step in the right direction by raising overall funding levels, funding for many programs the disability community relies on are still devastatingly low. Even with the sequestration relief provided, NDD funding is still significantly lower than 2010 levels, and this is simply unacceptable. The fight for IL funding is far from over! The BBA sets the blueprint for top-line FY 2016 funding, but Congress still needs to work on passing individual spending bills (or one large omnibus bill).

Please help us make sure that Congress knows how important IL is to their constituents around the country by visiting the NCIL Action Portal to send a message to your Senators. This is especially important if you have Senators on the Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies! Please take action now to fight for increased funding for IL in the FY 2016 budget!

Senate Appropriations L-HHS-ED Subcommittee Members

Republicans:

  • Chairman Roy Blunt (MO)
  • Jerry Moran (KS)
  • Richard Shelby (AL)
  • Thad Cochran (MS)
  • Lamar Alexander (TN)
  • Lindsey Graham (SC)
  • Mark Kirk (IL)
  • Bill Cassidy (LA)
  • Shelley Moore Capito (WV)
  • James Lankford (OK)

Democrats:

  • Ranking Member Patty Murray (WA)
  • RIchard Durbin (IL)
  • Jack Reed (RI)
  • Barbara Mikulski (MD)
  • Jeanne Shaheen (NH)
  • Jeff Merkley (OR)
  • Brian Schatz (HI)
  • Tammy Baldwin (WI)

Take Action to Stop Another Attack on the ADA!

They could barely wait for the banners to be taken down from the Americans with Disabilities Act (ADA) 25th Anniversary celebrations. Adding insult to injury, Representative Poe (R-TX) introduced H.R. 3765, the ADA Education & Reform Act, on October 20, 2015. The bill has already garnered support from others, including Representatives Collins (R-GA), Jolly (R-FL), Marchant (R-TX), and Lamar Smith (R-TX).

The bill is being touted as an education bill, which is a new approach by the American Hotel & Lodging Association and others supporting it. You may remember when NCIL members held a “pool party” at their office (located just a few blocks from the 2012 NCIL Annual Conference) after they supported similar legislation to damage the ADA.

ADA Notification Act with a Twist:

H.R. 3765 contains language similar to that used in past proposed legislation that would have limited the ADA. Section 3 of the bill creates a new crime for sending “a demand letter… alleging a violation of [Title III] of the Americans with Disabilities Act of 1990…” that does not meet certain requirements. This in itself is damaging and unacceptable. In no other civil rights legislation is it a crime to file a complaint.

Should this legislation pass, it would become effective 30 days after enactment.

As NCIL members, it is important that we take action on this bill before it gains legs. Now is the time to reach out to your legislators and ask them not to support H.R. 3765, which would create additional barriers to our civil rights as persons with disabilities. If enacted, this bill could set damaging precedence potentially affecting other civil rights legislation by making notification a crime.

NCIL will be working with other disability rights organizations to stop this bill. Should additional actions be required, we will reach out to the membership. We must ensure that the ADA stays strong by stopping proposals like this before they gain traction.

Visit the NCIL Action Portal to take action on this issue.

Washington Examiner Op-Ed: Doctor-Prescribed Suicide is Never the Answer

By Lindsay Baran and Anne Sommers

The disability community has been trying to have honest end-of-life conversations for years. After all, we’re the real experts on the front lines of the health care system that serves (and, sadly, often underserves) dying people. But for the most part, the megaphone has remained firmly within the grasp of the assisted suicide lobby and its well-intended supporters, many of whom haven’t been exposed to complete information about the construction, operation and consequence of such laws. Read more at the Washington Examiner.

 

Rooted In Rights Releases #CrappyCurb Campaign

Disability Rights Washington, publisher of Rooted in Rights, is the designated protection and advocacy agency for Washington State. Although the ADA was passed in 1990, Seattle did not survey its curbs until 2008. There is no Transition Plan, despite the efforts of advocates such as DRW, which wrote a letter to the city in January 2014 calling on the city to create one.

“We’re not asking the city to fix the thousands of violations today, or even tomorrow, or even next week,” DRW Staff Attorney Emily Cooper told Q13 Fox News. “All we are asking in this lawsuit is for them to come up with a plan.”

As part of the campaign, DRW is encouraging the public to post photos and videos of inaccessible curbs to social media, using the hashtag #CrappyCurb.

DRW also launched an original video, titled “Show us your #CrappyCurb,” highlighting the challenges faced by one woman navigating the curbs of downtown Seattle in her power scooter.

new video shares some of the photos of inaccessible curbs in cities across the United States.

Does your State Have Online Voter Registration Yet? An Update from the NCIL Voting Rights Subcommittee

By Jim Dickson and Kathy Hoell, Co-Chairs, NCIL Voting Rights Subcommittee

Recently, a number of states have realized that there are advantages to the state to have Online Voter Registration, so we have seen a number of Online Voter Registration sites becoming active.  The Secretary of State’s office has responsibility for elections; the result was a rush to create Online Voter Registration in time for next year’s presidential election while saving money.  In January 2015, the ACLU released a study of 20 states that have Online Voter Registration sites. Only the site in California was accessible to all people with disabilities.

So is your state’s Online Voter Registration site inaccessible? The things you need to consider are:

  • Can an individual who is blind or visually impaired access the voter registration form utilizing a screen reader?
  • Can an individual with a cognitive disability understand the language used on the voter registration form?
  • Can an individual with an upper mobility impairment utilize the voter registration form using their technology, i.e. voice recognition or retina tracking software?

If you can answer yes to all of these questions then your Online Voter Registration site is accessible to people with disabilities. For more information, feel free to contact the NCIL Voting Rights Subcommittee at [email protected]

Not Dead Yet, NCIL, and Four Other National Disability Groups File Friend of the Court Brief in New Mexico Supreme Court in Assisted Suicide Case

Source: Not Dead Yet / PRweb

On September 30, 2015, Not Dead Yet and five other national disability rights organizations filed a friend-of-the-court in the New Mexico Supreme Court in support of the State Attorney General’s request that the state’s high court uphold a Court of Appeals ruling that physician assisted suicide is not a right under the state constitution. Joining in the Not Dead Yet brief are ADAPT, Autistic Self Advocacy Network, the Disability Rights Education & Defense Fund, the National Council on Independent Living and United Spinal, collectively referred to as the “Disability Amici.”

NCIL logo - National Council on Independent Living

The case is Morris v. Brandenburg (S. Ct. No. 35,478) and the disability brief supports the Court of Appeals ruling, which was issued August 11, 2015 (Court of Appeals Case No. 33,630), and the State Attorney General, who is seeking to uphold the appellate ruling.

According to the brief filed in the New Mexico Supreme Court, “State-sanctioned assisted suicide degrades the value and worth of people with disabilities and violates the antidiscrimination rights, protections and mandates of the Americans with Disabilities Act, 42 U.S.C. § 12101, et seq.”

“Our basic position is that when some people get suicide prevention while other people get suicide assistance, and the difference is the person’s age, disability or health status, that’s a problem,” said Not Dead Yet’s president and CEO, Diane Coleman.

The dissent in the Court of Appeals decision that is the subject of the appeal to the state Supreme Court noted that the State Attorney General did not call witnesses or submit evidence of alleged any abuses in Oregon and Washington state where assisted suicide is legal. In their Supreme Court brief, the Disability Amici urge that, if the Court is not prepared to simply uphold the Court of Appeals at this stage, the Court should remand the case and allow one or more of the disability groups to assist the Attorney General or intervene as defendants in the case to ensure a full hearing of facts that were allegedly omitted in the original trial court.

Participate in the Day of Action for Real Change in Mental Health Policy on October 7!

Source: Campaign for Real Change in Mental Health Policy

On Wednesday, October 7, 2015 the Campaign for Real Change in Mental Health Policy is encouraging everyone to call, write, or use social media to contact their member of Congress and tell them that the Murphy Bill is bad for America.

Resources to advocate successfully are available at the link above.

Twitter Campaign: Tell The National Journal “Nothing About Us, Without Us!”

Also on October 7, from 8:30 – 10:30 AM Eastern Time, The National Journal and Janssen Pharmaceuticals are sponsoring an event in Washington, DC on mental health reform with speakers including Representative Tim Murphy (R-PA), Senator Chris Murphy (D-CT), and a variety of others. The sole voice missing from the discussion is that of those who would be most directly affected by the proposed policies – people with psychiatric disabilities!

The National Journal is encouraging people to use the hashtag #NJMentalHealth during the event. We encourage you to use your voice and your Twitter account to deliver the message that will be missing from the event. You can also use the hashtag #RealMHChange throughout the day. See sample Tweets.

Other ways to get involved:

An Update from the NCIL Mental Health Civil Rights Subcommittee

This year, marking the 25th anniversary of the passage of the Americans with Disabilities Act (ADA), gives us much to celebrate. While the ADA has strengthened civil rights protections and increased accessibility to some public transit and public accommodations (among many other things), it is far from perfect. The provisions relating to employment haven’t greatly increased the number of people with disabilities anywhere near as much as we would have hoped. Those of us who need access to print and/or electronic materials can tell you that said provisions are often disregarded and unnecessarily difficult to remedy or enforce.

Force Is Not Recovery 2012 protest signIn addition, there are other groups within the disability community whose civil rights either weren’t included in the original law and/or have been weakened by subsequent regulations, interpretations, and court decisions. While the amendments to the ADA (passed as the ADA Amendments Act in 2008) brought some clarification and relief, it simply couldn’t be expected to fix all concerns. Many types of disabilities such as multiple chemical sensitivity/environmental illness and other “new” disabilities (as yet uncategorized) are covered very little, if at all, by the ADAAA. In addition, parental and other civil rights issues concerning people with mental health disabilities are largely unaddressed by the ADA and its subsequent amendments.

One of the things that the ADA accomplished was to bring the disability community together as had not happened previously. One of the reasons why this happened was that the disability community put people with disabilities first. To a great extent, however, this hasn’t happened specifically for people with mental health disabilities. Too often, fear and discrimination prevail even though mental health disabilities are the most common type of disability – half of Americans can expect a mental health related diagnosis during their lifetime. And, people with disabilities, including those diagnosed with mental health disabilities, are more likely to become victims of violence than perpetrators of it, despite what keeps sadly appearing in news headlines.

On 4 June, Representative Murphy introduced H.R. 2646, the Helping Families in Mental Health Crisis Act. In August, a separate mental health bill (the Mental Health Reform Act S. 1945) was introduced in the Senate. Unfortunately, these bills, especially the one in the House, contain many of the provisions that threatened civil rights in the bill Representative Murphy introduced in the previous Congress, which did not pass. Provisions in the previous and current House bills threaten the structure of the Substance Abuse and Mental Health Services Administration (SAMHSA), threaten privacy rights, weaken the ability of the protection and advocacy (P&As) to do their work and increase the use of forced treatment in the community through supporting assisted outpatient treatment (AOT), among other concerns. NCIL opposes any legislation or administrative action that continues or strengthens denial of rights based solely on a diagnosis or disability and any deprivation of liberty based on disability rather than criminal activity. We will, of course, provide updates on relevant legislation as it moves through Congress and are already working vigorously to oppose the above-mentioned provisions these bills.

NCIL’s Mental Health Civil Rights Subcommittee meets monthly via teleconference and also maintains an active page on Facebook. Please contact us through NCIL’s website or via Facebook if you are interested in helping with our work.

Organizers Forum: Emergency Preparedness, 10 Years Post Katrina

Tuesday, September 15; 1:00 – 2:00 p.m. Eastern

  • Call-in: 1 (712) 832-8310
  • Passcode: 125175#
  • RSVP online

This month marks ten years after Katrina, with massive destruction and displacement faced by people with disabilities, seniors, families, and entire communities. What is happening now to make sure such a disaster won’t happen again? Hear from experts and advocates about emergency preparedness and disaster response for people with disabilities. Join a discussion about what kind of advocacy and organizing is needed.  [Read more…]